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AB 1488 — Sickle Cell Treatment Act

Dr. Keith Quirolo, who many of you know, has been successful in drafting and moving forward a bill in the California Legislature to improve sickle cell disease care in the state of California. Assemblymember Tony Thurmond is the sponsor of the bill, AB 1488. Support for the bill is needed NOW from people living with sickle cell disease, their families and everyone who cares about them. You are the people that your elected representatives listen to!

We have two draft letters that you can send in support of AB 1488 to Assemblymember Thurmond and to Assembly,ember Dr. Joaquin Arambula. Assemblymember Arambula is the chair of the Appropriations Committee, the committee that decides where funding goes. You can feel free to revise the letters, just be sure to include your full name and address so that Assemblymembers Thurmond and Arambula know what district you live in. A good way to revise the letters is to add a personal story about how sickle cell disease has affected you or your family member. You can also feel free to call or email their offices to express your support of the bill.

Contact Assemblymember Tony Thurmond via:
  (510) 286-1400
 - Draft letter
 - Send an email

Contact Assemblymember Dr. Joaquin Arambula via:
 - (559) 445-5532
 - Draft letter
 - Send an email

Contact Assemblymembers:
 - Website:  http://assembly.ca.gov/assemblymembers
 - Draft Sickle Cell Disease patient letter
 - Draft supporter letter

Contact Congressional Black Caucus Members:

Hon. Christopher Holden
Phone: (626) 351-1917

Hon. Shirley N. Weber, Ph.D.
Phone: (619) 531-7913

Hon. Steven Bradford
Phone: (310) 412-6120

Hon. Kevin McCarty
Phone: (916) 324-4676

Hon. Sebastian Ridley-Thomas
Phone: (323) 291-5441

Hon. Jim Cooper
Phone: (916) 670-7888

Hon. Mike Gipson
Phone: (310)324-6408

Hon. Reginald Byron Jones-Sawyer, Sr.
Phone: (213) 744-2111

Hon. Holly J. Mitchell
Phone: (213)745-6656

Hon. Tony Thurmond
Phone: (510) 286-1400

Hon. Autumn Burke
Phone: (310) 412-6400

This bill is historic! Sickle cell care has not received the needed funding in California so that children and adults with the disease can live longer, healthier lives. Let your voice be heard about this important bill and please feel free to invite your friends and family to support AB 1488 as well.

Click here for a fact sheet that outlines the need for AB 1488 and how the funding would be used to improve the care of people living with sickle cell disease in California.

Sincerely,
Dr. Carolyn Rowley
President/CEO

Resources:
Link to List of Members of the Budget Committee
Link to Budget Committee Additional List

 

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