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chronic illness management

Sickle Cell Disease (and other Hemoglobinopathies)

Hertz Nazaire
Artist: Hertz Nazaire
Sickle cell disease (sickle cell anemia, sickle hemoglobin C disease, sickle hemoglobin D disease, sickle hemoglobin E disease, and sickle beta thalassemia) is a group of hereditary disorders that affect the red blood cells. Two genes for the sickle hemoglobin must be inherited from one's parents in order to have the disease. A person who receives a gene for sickle cell disease from one parent and a normal gene from the other has a condition called "sickle cell trait." Sickle cell trait produces no symptoms or problems for most people. Sickle cell disease can neither be contracted nor passed on to another person. The severity of sickle cell disease varies tremendously. Some people with sickle cell disease lead lives that are nearly normal. Others are less fortunate, and can suffer from a variety of complications. Sickle cell disease and other hemoglobinopathies are present in all population groups but are more prevalent in persons of African, Mediterranean, Asian, Southeast Asian, Caribbean, and South and Central American origins. In California, the incidence of sickle cell disease is about 1 per 4,400.

In Southern California, if you are an adult with sickle cell disease or a parent of a child with sickle cell disease, there are services available. If you are a parent, please contact the Sickle Cell Disease Foundation of California (909-587-6154) for more information and support. If you are an adult with sickle cell disease, here at Cayenne Wellness Center, we have several support group locations (Los Angeles, Lancaster and Loma Linda). Call us at 818 377 5120 for more information.

Support Group

Parents. A safe place to turn when you feel completely alone. Every year approximately 150 babies are born with sickle cell disease in California. This means that there are many people facing similar challenges and who can understand what you are going through.

Adults (aka Sickle Cell Support Group of Southern California).
You are not in this alone. There are others who understand what you are going through. Join us at one of the locations below. Come and socialize, meet new friends and educate yourself on the latest information in research, treatment, and alternative modalities.

Locations for Adult Sickle Cell Support Groups:

Los Angeles location:
The Wellness Center LA (previously known as LACUSC)
1200 N. State St.
Room 1032
Los Angeles, CA 90033
Contact: Dr. Carolyn Rowley — carolyn@cayennewellness.org or 818-731-5408

Loma Linda location:
Loma Linda University
PossAbilities Office
Professional Plaza, Building A
25455 Barton Rd. Suite 109A
Loma Linda, CA 92354
Contact: Sheila Marchbanks — tnsheshe@gmail.com or 909-851-8194

Lancaster location:
Antelope Valley Hospital
1600 West Ave J., Rm. 101
Lancaster CA 93534
Contact: Jacqueline Williams Brooks — jacquelyn.williamsbrooks@avhospital.org or 661-949-5025

Community Education

See our news/calendar page

Camp Crescent Moon - A specialized summer camp for children (8 - 14) with sickle cell disease. Each year nearly 100 children from Southern & Central California attend the nation's first week long summer camp of its kind. Since 1967, the Sickle Cell Disease Foundation of California has provided an outdoor camping program for children with sickle cell disease, who because of serious medical complications would not be able to attend traditional camps. Camp Crescent Moon allows campers to participate in a creative outdoor experience and provides growth and development for each camper. Contact The Sickle Cell Disease Foundation of California for more information (310.693.0247).

Faces of Sickle Cell Disease Photo Project

An educational/informational photo exhibit that brings a face to the disease that will be exhibited in museums, libraries, book form and other media.

If you or a loved one is interested in participating, click here for more information.

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