Sickle Cell Disease Lives Matters – Sickle Cell Disease Newborn Screening Follow-up Program (HRSA Grant SCDAA-NBS2017-CWC)
We are pleased to announce that Cayenne Wellness Center is a sub awardee of the HRSA Newborn Screening Follow-Up Program | Grant No.: SCDAA-NBS2017. This grant will allow us to reach persons diagnosed with sickle cell disease throughout the state of California in an effort to assess their needs, provide community based services, care coordination, and health education on sickle cell 101, latest treatments and curatives, and best practices for advocating for oneself. In addition, through our certified Community Health Workers and Independent Contractors, we will build partnerships with hospital and health systems, state government agencies, clinics and other institutions to locate patients throughout the state of California.
For patients: If you are a patient or know someone that has sickle cell disease, feel free to refer or contact one of our Community Health Workers (CHW) in your region.
REGIONAL CHWs:
San Diego: Khang ‘Bryan’ Hoang
Phone: (619) 548-5563
Email
Los Angeles (South, North, Loma Linda and Antelope Valley):
Daishanee Hatchett
Phone: (323) 679-3455
Email
Yvonne Avila
Phone: (323) 868-8861
Email
Inland Empire (Loma Linda, San Bernardino, Riverside):
Maxine Ortega
Phone: (909) 377-8896
Email
Central California (Bakersfield, Fresno, Merced, Atwater):
Shanti Johnson-Harris
Phone: (559) 360-5001
Email
Orange County:
Star Simmons
Phone: ( 323 ) 400-3213
Email
California (Bilingual ENG-SPN CHW):
Yvonne Avila
Phone: (323) 868-8861
Email
San Diego: TBD
Phone: TBD
Email
Northern California (San Francisco, Oakland, Sacramento, and more):
TBD
Phone: (818) 940-0079
Email
HEALTH EDUCATOR AND NURSE NAVIGATOR
Pat Corley, RN
Phone: (562) 889-4229
Email
COLLABORATIVE PARTNERS
Northern California (San Francisco, Oakland, Sacramento):
NeDina Brocks or Antwan Capla
Phone: (415) 720-4458
Email
San Bernardino: Felicia Hunt
Phone: 909-260-5888
Email
Sickle Cell Community Advisory Council (SCCAC)
Wanda Payton-Williams
Phone: (510) 406-1087
Email
Julie Dunbar
Phone: TBD
Email
Axis Advocacy
Phone: (323) 506-2224
Email
Casey Gibson
Phone: TBD
Email
Cassandra Trimnell
Phone: TBD
Email
SCAA – San Francisco
NeDina Brocks Capla
Phone: TBD
Email
Kiki Shepard
Phone: TBD
Email
Sickle Cell Foundation of Orange County
Starlerra Simmons
Phone: (323) 400-3213
Email
World SC Federation
Nita Thompson
Phone: TBD
Email
Rochelle Richards
Phone: TBD
Email
San Bernardino
Felicia M. Hunt
Phone: (909) 260-5888
Email
Loma Linda
Sheila Marchbanks
Phone: (909) 851-8194
Email
