Our Story: 1st Annual Hispanic Heritage Sickle Cell Disease Symposium
Cayenne Wellness Center and Children’s National Hospital present the 1st Annual Hispanic Heritage Sickle Cell Disease Symposium!
Hispanic-American are an underappreciated population affected by sickle cell disease (SCD) and despite the sizable number affected by SCD, the availability of public health resources and support in Spanish for these patients are at a minimum.
During this symposium, which will be conducted in Spanish and English, we will review the current state of SCD and look at this population’s story with challenges and priorities related to SCD treatment. Topics include FDA approved treatments and curatives, sickle cell 101, stigma, and sickle cell trait awareness.
Attendees will hear from advocates and medical professionals as we present education and engagement activities to diverse members of the sickle cell community who are Spanish speaking.
to create an educational platform for Spanish speaking persons diagnosed with SCD while building community and diversifying networks;
to spread awareness of SC trait;
to provide information on FDA-approved treatment and curatives; and
to hear about stigma and identify needs.