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2024 SCD Summit

Welcome!

Adrienne Shapiro

Adrienne Shapiro

Carolyn Rowley, PhD

Carolyn Rowley, PhD

Etta Carter

Carley Cole-Cavins

Pat Corley, RN

Pat Corley, RN

Sheila Marchbanks

Sheila Marchbanks


The 16th Annual Sickle Cell Disease Educational Summit will be held at the Torrance Marriott, Redondo Beach. The address is: 3635 Fashion Way, • Torrance, CA 90503.

For Sickle Cell Warriors and Caregivers: Your fee of $300.00 includes your hotel stay, meals and registration. Please note that you will have to room with another Warrior. The Program Manager will contact you shortly after registration.

For Others: Your registration fee does not include lodging. We ask that you contact the hotel at (310) 316-3636 and book your room under the Cayenne Wellness Center block for discount pricing.

Use the link below to book your group rate for 16th Annual Sickle Cell Disease Educational Summit!

(Link to book hotel room (everyone but warriors and caregivers)

For more information, feel free to contact Dawna Jakubecy, Program Assistant at 818-940-0079. Thank you.

Celebration of Life

Details coming soon!

For questions, please contact Sheila Marchbanks, Planning Committee Member at tnsheshe@gmail.com

As we continue to prepare for the upcoming event, we are working hard to identify your questions and provide answers. Check here often for new FAQs, and if you need additional assistance, email us at support@cayennescdseminar.org.

I’m attending the event virtually. How do I access the event?

To join the virtual event, you can either join via your web browser on a laptop/computer or mobile device, or download the event app and join sessions from within the app.

To view on computer click the link below:

Computer Link

To view on the mobile app click the link below:

Mobile App

I’m attending in-person. Can I also view sessions virtually?

Yes, you can! As long as you’re registered for the event, you can download the event app, or access the event website to view any session, from the comfort of your hotel room, or from anywhere else as long as there’s an internet connection.

To view on computer click the link below:

Computer Link

To view on the mobile app click the link below:

Mobile App

Will I need to leave a credit card?

PLEASE READ ABOUT *INCIDENTAL HOTEL HOLD*

If Cayenne Wellness Center covers your rooms, the hotel will require a soft incidental hold. Don’t be alarmed. This hold will temporarily remove the money from your account but will be replaced within a few days. Please bring a credit card that can hold the fees temporarily. The fees may be as much as $100/day or more.

I am a Warrior or Caregiver. How do I book a hotel room?

If you are a Warrior or Caregiver and you’re attending the event in-person hotel is included in your in-person fee (not commuter), and you should select the in-person registration.

I need a plane or other ticket to get to the event. How do I request that?

Transportation to and from the event is the responsibility of the attendee. Please contact the Cayenne staff with additional questions regarding transportation.

How do I register for the event?

You can register for the 16th Annual Sickle Cell Disease Educational Seminar via the Cayenne website (see the registration images above) or via the email you may have received as an invitation to register.

I made a mistake on my registration, how do I change it?

To change your registration, locate the confirmation email you received. Once located, find your confirmation number, highlight it, and click ‘control-c’. At the bottom of your email, you’ll see a “View or Modify your registration” link. Click that link, and enter your confirmation number to modify your registration:

How much does the event cost?

The price of the event depends on a number of factors, including your attendee category.

I want to register for the virtual event. How do I do that?

Registering for the virtual event is fast and easy – simply click the virtual event image shown on the page above to get started.

I want to attend in person. How do I register?

Registering for the in-person event is fast and easy – simply click the in-person event image shown on the page above to get started.

How do I cancel my registration?

To cancel your registration, locate your confirmation email, copy your confirmation number, and click the ‘View or modify your registration’ link at the bottom of the email. Once you’ve pasted your confirmation number and logged in, scroll to the bottom of the screen. You’ll see a ‘Cancel Registration’ button – click that button and follow the instructions to process your cancellation. Note that Cvent will automatically refund any fees paid directly to the form of payment you used during registration.