Stay informed with our News and Updates, where we post the latest developments in sickle cell disease research, treatment advancements, community stories, and essential updates. This space is dedicated to keeping you abreast of current information and inspiration from the sickle cell community.
April 29, 2026 | At California Sickle Cell Advocacy Day, patients and families rally at the state Capitol, urging lawmakers to invest $15 million in community services and adopt evidence-based care standards.
August 31, 2022 | The White House recognizes National Sickle Cell Awareness Month, emphasizing the challenges faced by patients and efforts to find treatments and cures. President Biden urges support and education on the disease.
November 29, 2019 | FDA grants accelerated approval to Oxbryta (Voxelotor) by Global Blood Therapeutics for sickle cell disease patients aged 12 and above. It reduces sickling of red blood cells, improving hemoglobin levels.
November 15, 2019 | FDA approved Novartis’ Adakveo to reduce vaso-occlusive crises (VOCs) in sickle cell disease patients. Adakveo binds to P-selectin, lowering VOCs frequency by 45%. Novartis anticipates its availability soon.
July 8, 2017 | Endari is indicated to reduce the acute complications of sickle cell disease in adult and pediatric patients 5 years of age and older. It has received Orphan Drug designation in the U.S. and Orphan Medicinal Product designation in the EU.
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