Thursday, September 15
8:00 am – 8:10 am
Black Panther Moments & Community Engagement
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8:45 am – 9:00 am
Welcome to California: Embracing Possibilities by Dr. Carolyn Rowley, PhD
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Executive Director at Cayenne Wellness Center and Adrienne Shapiro
· Dr. Carolyn Rowley, Executive Director, Cayenne Wellness Center
· Adrienne Shapiro, Axis Advocacy
· Reverend Zemoria Brandon, BSW, Social Worker Administrator, Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter
9:00 am – 12:45 pm
Morning Session: Sickle Cell Action Network (CME = 3.75 hrs)
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· Keith Quirolo, N/A
· Jhaqueline Valle, Research Scientist, Tracking California
· Niani Coker, MPH, CHES, Tracking California
· Patrick T. McGann, MD PhD
2:00 pm – 3:30 pm
Afternoon Session I: Sickle Cell Trait Education – Moderated by Tomia Austin, MEd, DrPH (CME = 1.5 hrs)
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· Tomia Austin, MEd, DrPH, Executive Director of As One Foundation; Technical Advisor/Consultant for Sickle Cell Trait & Disease research, As One Foundation
· Chase Jamele, Program Coordinator, Cayenne Wellness
· Keith Quirolo, N/A
· Tracey Bishop, GDPS, California Department of Public Health
· Amber Yates, M.D., Medical Director, Agios Pharmaceuticals
3:40 pm – 6:15 pm
Afternoon Session II: Clinical Trials in Gene Therapy and Bone Marrow Transplant – Moderated by Alexis Thompson, M.D. (CME = 2.5 hrs)
[View Session] · Alexis A. Thompson, MD MPH
· Akshay Sharma, Assistant Member, Department of Bone Marrow Transplantation and Cellular Therapy, St. Jude Children’s Research Hospital, Memphis, TN
· Adrienne Shapiro, Axis Advocacy
· Lisa B. Pullens, City of Hope Medical Center Pediatric BMT Dept.
· Patricia Niver, Parent of BM Warrior & SC Warrior , CHOA
· Maria Rivera, Administrative Assistant, Sickle Cell Community Consortium
· Jimi Olaghere, Manager Of Publisher Development, StackCommerce
· Tesha Samuels, Walk for ExSCellence
· Jewelyn Mims, Substitute Teacher and Historian, California State University, Los Angeles and Pasadena Unified School District
6:15 pm – 6:45 pm
Candlelight Ceremony
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· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Dr. Carolyn Rowley, Executive Director, Cayenne Wellness Center
Friday, September 16
8:00 am – 8:10 am
Black Panther Moments & Community Engagement
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9:00 am – 10:45 am
Morning Session I: Stephanie Mulkey Keynote Speaker Session – Dying In The City of The Blues and The Pain Game (Discover magazine article) by Wally Smith, MD (CME = 1.5 hrs)
[View Session] Wally R. Smith, MD, Professor of Sickle Cell Disease University Distinguished Professor, Virginia Commonwealth University
10:45 am- 12:40 pm
Living My Best Life with Sickle Cell Disease. What Inspires You? – Interactive (CME = 2 hrs)
· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Jody Johnson, Cayenne Wellness
11:00 am – 12:15 pm
Breakout Session 1: Art
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11:00 am – 12:15 pm
Breakout Session 2: Music
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11:00 am – 12:15 pm
Breakout Session 3: Vision Board
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11:00 am – 12:15 pm
Breakout Session 4: Writing/Journal
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11:00 am – 12:15 pm
Breakout Session 5: Mindfulness (Breathwork and Movement)
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11:00 am – 12:15 pm
Breakout Session 6: Nutrition/Cooking
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11:00 am – 12:15 pm
Breakout Session 7: Gardening
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1:30 pm -1:50 pm
Movement/Exercise by Marjorie DeJoie Brewer
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· Marjorie Brewer Dejoie, M.D., MAD Fit
2:00 pm – 3:30 pm
Afternoon Session I: PsychoSocial: What’s All The Chatter About… Unconscious and Implicit Bias and Racism (CME = 1.5 hrs)
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· Theopia Jackson, PhD., Program Chair, Clinical Psychology Degree, Saybrook University
· Stephen Nelson, Hackman Consulting
· Ulysse Guierrier, President, Sickle Cell Association of Ontario
· Ginger Davis, President, Sickle Cell/Thalassemia Patients Network, Inc. (SCTPN)
· Shirley D. Powell, ND
· Phillip Okwo, Catalyst Finance, Dow
· Dr. Jean Walrond Ph.D., President & COO, Research & Education, Sickle Cell Foundation of Alberta
· Pat Corley, RN, Registered Nurse, Nurse Educator
3:45 pm – 5:15 pm
Afternoon Session II: Modifying Therapies – Moderated by Eva Enechukwu (CME = 1.5 hrs)
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· Eva Okereke-Enechukwu, Provider, Florida Sickle Cell Center
· Carolyn Hoppe, MD, Senior Medical Director, Clinical Science Global Blood Therapeutics
· Misty Williams
· Tynisha K. Hall, TynishaKCollectionLLC
· Adrienne Shapiro, Axis Advocacy
· LeKita Deal
· Felicia M. Hunt, MA, Sex Coach, 6EXCoach Sex coaching and sex education services
· Yvette Davis, Social Worker, Los Angeles County
· Kamille Linton, Medial Assistant , SC Warrior
· Mary Moore RN, RN/Living Benefits Specialist, Axis Advocacy
· Kadeem Gayle, Health Coach, Carisma
· Anthony Richardson, Fire safety Inspector, SCD
· Robert Brodie, PhD, Senior Psychologist supervisor, Patton State Hospital
· Marcus McKinley, SCCA, SOFWSCD, Indp Pt Advocate
5:30 pm – 7:00 pm
Young Adult Session (ages 18 – 35) – Embracing Possibilities Moderated by Calvanay Nunley and Servio Astacio (CME = 1.5 hrs)
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· Calvanay Nunley, Director of Camp Super Star : Sickle Cell Camp in the Northern California/ Mentor/ Advocate, The Pull Up
· Servio Astacio, Contract Loan Processor, Independent Processing Network
· Aaron N Washington, Intern, SICKLE CELL CONSORTIUM
· Alexis Lewis, California State University Northridge
· Traci “Trai IcarT” Caudle, Artist
· Lathan Singleton, The Unspoken Hero Society
· Charon Simmons, Spokesperson, Sickle Cell Foundation of Orange County
· Lance Jasper Jones, Director, Jasper House Warriors Foundation, Inc.
8:00 pm – 9:30 pm
Benefit Concert featuring Dessy DiLauro and Ric’key Pageo of Parlor Social
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