Thank you for your interest in the 12th Annual Sickle Cell Disease Educational Seminar, hosted by Cayenne Wellness Center and Axis Advocacy. Use the tabs below to learn more about the event – to register right away, click the “Register/Get Tickets” tab to choose your ticket type. And please consider making a donation to help the Cayenne Wellness Center provide event lodging and access to the many Sickle Cell Disease Warriors we work with. We would greatly appreciate your help!
Celebration of Life
On Thursday, September 5, 2019 at 7:30 pm, during the 11th Annual Sickle Cell Disease Educational Seminar, we will be honoring our loved ones diagnosed with Sickle Cell Disease whom have passed on.
Though you are welcome to attend the seminar and the Celebration of Life Ceremony, you do not need to be present to honor your loved one. Here are the details:
- Submit a high-resolution photo of your loved one here – https://dropevent.com/send83979 <https://dropevent.com/send83979>
- In the caption, type their Name, Date of Birth, Date of Passing and Country.
Example: Charlie Brown • DOB: 1.1.1940 • DOP: 1.1.2019 • Brazil
- The deadline to submit your photo(s) is Friday, August 2, 2019.We will be live streaming the event, so you can be present no matter where you reside.
There is no limit on the number of Celebration of Life honorees.For questions, contact Juanita Hampton, Program Manager at email@example.com
For more information on the 11th Annual SCD Educational Seminar, click here: https://cayennewellness.org/2019-scd-seminar/
Tomia Austin, DrPH
Executive Director, As One Foundation
Rahul Ballal, PhD
CEO, Imara Inc.
Cheryl Brewer, PhD
Associate Vice President of Nursing
Private Diagnostic Clinics at Duke Health
Ken Bridges, M.D.
Vice President of Global Blood Therapeutics
California Department of Public Health
Thomas Coates, M.D.
Division Head of Hematology
Director, Sickle Cell and Hemoglobinopathy Program, Children’s Center for Cancer and Blood Diseases at Children’s Hospital Los Angeles
Ellen K. Donnelly, PhD
Chief Executive Officer, Modus Therapeutics
President and CEO, Sickle Cell Disease Association of America, Inc.
Loretta Gilmore, DDS
Anya Griffin, PhD
Edward Donnell Ivy, MD, MPH
Medical Officer, Maternal and Child Health Bureau
Health Resources and Services Administration
Tanica Jeffries, MS, LPC, LSW
Clinical Program Coordinator
Comprehensive Sickle Cell Disease and Thalassemia Services
Hematology/Oncology/BMT-Center for Childhood Cancer and Blood Diseases
Jenny Kim, M.D.
Director, Comprehensive Sickle Cell Center
Rady’s Children Hospital
Eboni Lance, M.D.
Medical Director, Sickle Cell Neurodevelopmental Clinic
Kennedy Krieger Institute
Assistant Professor, Neurology
Johns Hopkins University School of Medicine
Edgar Lerma, MD, FACP, FASN, FPSN (Hon)
Clinical Professor of Medicine
Section of Nephrology
University of Illinois at Chicago College of Medicine/ Advocate Christ Medical Center
Oak Lawn, IL
CEO & Founder, Kids Conquering Sickle Cell Disease Foundation, Inc.
Ted Love, M.D.
Global Blood Therapeutics
Shona Stephens Markham, MPH
Board Chair, Cayenne Wellness Center
Anne Marsh, M.D.
VP & Head, Hemoglobinopathy Programs
Dawn Nelson, Ph.D. CCC-A
Central Michigan University
Yutaka Niihara, M.D.
Jincy Paulose, M.D.
Medical Director – Iron Overload and Sickle Cell Disease (IO & SCD)
U.S. Oncology Medical
Novartis Pharmaceuticals Corporation
CEO, Kind VR
Samuel Rodgers-Melnick, MT-BC (Music Therapist -Board Certified)
UH Connor Integrative Health Network
University Hospitals Seidman Cancer Center
Keith Quirolo, M.D.
Joseph Rosenthal, M.D.
Barron Hilton Professor & Chair in Pediatrics
Director, Pediatric Hematology/Oncology
City of Hope
Adrienne Shapiro, EdD
Founder, Axis Advocacy
Sandeep Soni, M.D.
Assoc. Prof. of Pediatrics
Div. of SCT & RM
Director, Northern California, Network of Care for Sickle Cell Disease
Ashley Valentine, MRes
Co-Founder & President, Sick Cells
Melissa Welles, C.N.H.P.
Nutritionist, Natural Body Repair
Kevin Williams, M.D., J.D., M.P.H.
Chief Medical Officer, Rare Disease
Pfizer Innovative Health
12th Annual Sickle Cell Disease Educational Seminar:
A Global Approach to Sickle Cell Disease:
Tentative Program At-A-Glance
click here to download the schedule
Thursday, September 17, 2020
7:30 am Movement exercise – Stretching
8:00 am Brunch and Registration
Legislative Action Workshop (Moderator: Dr. Keith Quirolo, Dr. Diane Nugent, Maggie Jalowsky)
9:15 am Panel Discussion
10:30 am Workshop (Breakout Groups)
11:45 am Wrap Up
12:00 – 2:00 pm Lunch
Afternoon Session I:
2:00 – 3:15 pm Sickle Cell Trait (Education and Awareness):
CA Department of Public Health, Farron Dozier, Dr. Rakhi Naik
3:15 – 3:30 pm Break
3:30 – 5:00 pm Afternoon Session II:
Clinical Trials for Sickle Cell Disease – Part I
Gene Therapy and Stem Cells (Moderated by Anjulika Chawla, MD)
5:00 pm Dinner
5:45 pm Video Presentation – Celebration of Life followed by a Candlelight Ceremony (Moderated by Sheila Marchbanks)
6:00 pm Adjourned
Friday, September 18, 2020
7:30 am Movement exercise – Yoga
7:45 am Registration and Breakfast
8:55 am Cayenne Wellness Center Board of Directors (Shona Markham, President)
9:10 am Introduction: Corey Hebert MD
I. Morning Session: Stephanie Mulkey Keynote Speaker Series
Sickle Cell 101: Pathophysiology, Complications, Management and Treatment
9:30 am Professor Dame Elizabeth Nneka Anionwu – UK
10:45 am Break
II. Morning Session: Living Well With Sickle Cell Disease (Moderator: Alexis Thompson, MD)
11:00 am Introduction
11:15 am Patient Panel – Global
Represented will be patients from Bahrain, France, Kenya, Brasil, Australia, Canada, and the U.S.A.
12:30 pm Lunch (provided)
Men Living With Sickle Cell Disease; Adolescents Living With Sickle Cell Disease
2:00 pm Summary of Lunch Presentations
2:30 pm III. Afternoon Session: Sickle Cell Disease and the Battle for Equality, Justice, and Respect – Ahmar Zaidi, MD
3:45 pm ASH Update on Sickle Cell Disease
4:30 pm Adjourned
7:00 pm Network Reception. Generation S Rock the Block (Sponsored by Novartis)
Saturday, September 19, 2020
7:30 am QiGong
7:45 am Registration and Breakfast
9:00 am I. Morning Session: Pat Corley, RN Keynote Speaker Series
The Brain: Executive Functioning and Sickle Cell Disease (Part II)
Eboni Lance, MD Keynote Speaker
10:15 am Break
II. Morning Session: Understanding Mental Health in Sickle Cell Disease (Moderator: Charles Jonassaint, PhD)
10:30 – 12:00 pm Overview – Charles Jonassaint, PhD
Depression, Anxiety, Grief and Hopelessness
Suicide Prevention Center
Solution Focused CRM Model – Beverly Buckles
12:00 pm Lunch (provided)
Women Living With Sickle Cell Disease; Spouses and Caretakers Living With SCD
1:30 pm Summary of Lunch Presentations
2:00 pm III. Afternoon Session. Treatment Therapies and Sickle Cell Moderated by Adrienne Shapiro, Axis Advocacy
Global Blood Therapeutics – Ken Bridges, MD
Emmaus Life Sciences – Charles W. Stark, Pharm.D. Novartis – Jincy Paulose, MD
Imara, Cyclerion, Terumo BCT and another pipeline therapies
3:40 pm Evaluations
3:45 pm Announcement of the 13th Annual Sickle Cell Disease Educational Seminar
4:00 pm Closing of the 12th Annual SCD Educational Seminar
4:00 pm Adjourned
PLEASE NOTE: TRANSPORTATION IS INCLUDED IN THE PRICE OF ADMISSION FOR PEOPLE WITH SICKLE CELL.
VENUE: San Diego Marriott Mission Valley
Address: 8757 Rio San Diego, CA 92108, United States
The 11th Annual Sickle Cell Disease Educational Seminar will be held at the San Diego Marriott Mission Valley. The address is: 8757 Rio San Diego Drive • San Diego, CA 92108
For Patients: Your fee of $50.00 includes your hotel stay. Please note that you will have to room with another patient. The Program Manager will contact you shortly after registration.
For Caretakers and Patients attending together: Your combined fee of $100.00 includes your hotel stay. Please note that you will room with each other. The Program Manager will contact you shortly after registration.
For Others: Your registration fee does not include lodging. We ask that you contact the hotel at 619-692-3800 and book your room or click on the link below. Our discount rate ended on August 14, 2019. We’re looking forward to seeing you.
For hotel reservations, contact Katryna Dillard (619) 209-6610 or Allison at Muhar (619) 209-6609. Let them know that you will be attending the Cayenne Wellness Center Sickle Cell Disease Educational Seminar.
For more information, feel free to contact Juanita Hampton, Program Manager at 818-940-0079. Thank you.