[Download the 2024 16th Annual SCD Educational Summit Program Book]

Session recordings are below.

[Download the Event Brochure]

[Download the Special Event Brochure Insert]

Wednesday September 13, 2023

Past, Present, and Future: The Therapies
1:30 PM-2:00 PM [View Session]
Keith Quirolo, MD
SC Advocate
SC101 & Cayenne Wellness Center

Five (5) FDA-Approved Therapies
2:00 PM-3:15 PM [View Session]
Pfizer Inc.
Pfizer

Emerging Therapies
3:15 PM-4:15 PM [View Session]
Agios Pharmaceuticals

Gene Therapies
4:15 PM-5:45 PM [View Session]
Beam Therapeutics

Thursday September 14, 2023

Welcome
8:30 AM-9:00 AM [View Session]
Andrew Campbell, MD

Highlight The Giants
9:00 AM-12:15 PM [View Session]
Keith Quirolo, MD
SC Advocate
SC101 & Cayenne Wellness Center

Sickle Cell Trait Education
2:00 PM-4:30 PM [View Session]
Pat Corley, RN
Nurse Educator
Cayenne Wellness Center & Children´s Foundation

Are We Where They Wanted Us To Be? Gene Therapy, Cost
4:15 PM-4:45 PM [View Session]
Betty Pace, MD
Distinguished Chair of Pediatric Hematology/Oncology
Augusta University

Before The Flood: Benefits of the Sickle Cell Movement: Marilyn Gaston, MD
4:45 PM-5:30 PM [View Session]

Celebration of Life
5:30 PM-6:00 PM [View Session]
Sheila Marchbanks, MBA
SC Advocate & Warrior

Friday September 15, 2023

Stephanie Mulkey Keynote Speaker Session – Are We Where They Want Us To Be?
9:00 AM-12:30 PM [View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)

Wellness Break: Hydration, Breathing, and Mental Health
1:30 PM-2:00 PM [View Session]

PsychoSocial Part I: Developing Brilliance, Resilience and Strength: We’re Smart and We’re Strong
2:00 PM-3:30 PM [View Session]
Trudy M. Tchume-Johnson
Program Manager/Newborn Screening Coordinator
The Children’s Hospital of Philadelphia

PsychoSocial Breakout II: Main Session
3:30 PM-6:45 PM [View Session]
Andre Marcel Harris, MSW
Sickle Cell Association of Houston

PsychoSocial Breakout: Baby Boomers Session (60 and older)
3:35 PM-5:00 PM [View Session]
Wanda Williams

PsychoSocial Breakout: Caregiver (includes Parent/Children/Spouses/Partner/Siblings)
3:35 PM-5:00 PM [View Session]

PsychoSocial Breakout: Generation Alpha – (11 – 17)
3:35 PM-5:00 PM [View Session]
Ninah Walters

PsychoSocial Breakout: Generation X Session (43 – 59)
3:35 PM-5:00 PM
[View Session]
Felicia M Hunt, PsyD
MA in Marriage and Family Therapy (MFT), Sex Coach, and Sex Educator 6EXCoach, LLC

PsychoSocial Breakout: Generation Z – (18 – 26)
3:35 PM-5:00 PM [View Session]
Dalia Thomas

PsychoSocial Breakout: Millennials Session (27 – 42)
3:35 PM-5:00 PM [View Session]
Dorian Archie

Celebration, Tribute Gala
6:45 PM-9:30 PM [View Session]
Matt Jemele
Matt Jamele and The Jammin’ Jellies

Saturday September 16, 2023

Welcome and Cayenne Wellness Center Board Updates
8:20 AM-8:40 AM [View Session]
Shona Stephens, MPH
CWC Board Chair
Cayenne Wellness Center

Awards
8:30 AM-9:45 AM [View Session]
Master Burt
Artist
Master D. Burt

Pat Corley Keynote Speaker Session: Shout out to; Call out to; What is your value? What do you bring?
9:45 AM-11:00 AM [View Session]
Stephanie Ibemere, PhD, RN
Assistant Professor in the School of Nursing
Duke University

Global Patient Panel
11:00 AM-1:30 PM [View Session]
Cassandra Trimnell
Patient Advocate & Executive Director SC101

Patient Experiences (focus on management and treatment)
11:00 AM-11:15 AM [View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)

SC101
11:15 AM-1:00 PM [View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)

Implicit Bias Training
1:00 PM-3:45 PM [View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)

Wellness Break – Hydration, Breathing, and Nutrition
1:30 PM-2:00 PM [View Session]

Self Care (Main Room)
2:00 PM-2:15 PM [View Session]

Self Care: Art (Virtual)
2:15 PM-3:30 PM [View Session]
Mia Robinson
Executive Director and Co-founder
Sickle Cell Awareness 365 (SCA365)

Self Care: Cooking (In Person)
2:15 PM-3:30 PM [View Session]
Melissa Corral
Dietitian
Nutrition Savvy, LLC

Self Care: Cooking (Virtual)
2:15 PM-3:30 PM [View Session]
Misty Williams

Self Care: Gardening (Virtual)
2:15 PM-3:30 PM [View Session]
Lori Vick, Ph.D., MAT, RN
Nursing Professor & Researcher
University of South Carolina

Self Care: Vision Board (Virtual)
2:15 PM-3:30 PM [View Session]
Vernita Bradford, MSW
Kaiser Permanente

Self Care: Sound Healing (Virtual)
2:15 PM-3:30 PM [View Session]
Carolyn Rowley, PhD
Executive Director & Founder
Cayenne Wellness Center & Children´s Foundation

My Journey, My Legacy (Main Room)
3:30 PM-5:30 PM [View Session]
Theopia Jackson, PhD
Chair, Department of Humanisitic Clinical Psychology
Saybrook University

My Journey, My Legacy (Breakout 1 – Shyra Arrington)
3:45 PM-4:45 PM [View Session]

Patient Experiences (specific to ED)
3:45 PM-4:00 PM [View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)

Emergency Room
4:00 PM-5:00 PM [View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)

Stroke and Intracranial Bleeds
5:00 PM-6:30 PM [View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)

Thursday, September 15

8:00 am – 8:10 am
Black Panther Moments & Community Engagement
[View Session]

8:45 am – 9:00 am

Welcome to California: Embracing Possibilities by Dr. Carolyn Rowley, PhD
[View Session]
Executive Director at Cayenne Wellness Center and Adrienne Shapiro
· Dr. Carolyn Rowley, Executive Director, Cayenne Wellness Center
· Adrienne Shapiro, Axis Advocacy
· Reverend Zemoria Brandon, BSW, Social Worker Administrator, Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter

9:00 am – 12:45 pm

Morning Session: Sickle Cell Action Network (CME = 3.75 hrs)
[View Session]
· Keith Quirolo, N/A
· Jhaqueline Valle, Research Scientist, Tracking California
· Niani Coker, MPH, CHES, Tracking California
· Patrick T. McGann, MD PhD

2:00 pm – 3:30 pm

Afternoon Session I: Sickle Cell Trait Education – Moderated by Tomia Austin, MEd, DrPH (CME = 1.5 hrs)
[View Session]
· Tomia Austin, MEd, DrPH, Executive Director of As One Foundation; Technical Advisor/Consultant for Sickle Cell Trait & Disease research, As One Foundation
· Chase Jamele, Program Coordinator, Cayenne Wellness
· Keith Quirolo, N/A
· Tracey Bishop, GDPS, California Department of Public Health
· Amber Yates, M.D., Medical Director, Agios Pharmaceuticals

3:40 pm – 6:15 pm

Afternoon Session II: Clinical Trials in Gene Therapy and Bone Marrow Transplant – Moderated by Alexis Thompson, M.D. (CME = 2.5 hrs)
[View Session] · Alexis A. Thompson, MD MPH
· Akshay Sharma, Assistant Member, Department of Bone Marrow Transplantation and Cellular Therapy, St. Jude Children’s Research Hospital, Memphis, TN
· Adrienne Shapiro, Axis Advocacy
· Lisa B. Pullens, City of Hope Medical Center Pediatric BMT Dept.
· Patricia Niver, Parent of BM Warrior & SC Warrior , CHOA
· Maria Rivera, Administrative Assistant, Sickle Cell Community Consortium
· Jimi Olaghere, Manager Of Publisher Development, StackCommerce
· Tesha Samuels, Walk for ExSCellence
· Jewelyn Mims, Substitute Teacher and Historian, California State University, Los Angeles and Pasadena Unified School District

6:15 pm – 6:45 pm

Candlelight Ceremony
[View Session]
· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Dr. Carolyn Rowley, Executive Director, Cayenne Wellness Center

Friday, September 16

8:00 am – 8:10 am

Black Panther Moments & Community Engagement
[View Session]

9:00 am – 10:45 am

Morning Session I: Stephanie Mulkey Keynote Speaker Session – Dying In The City of The Blues and The Pain Game (Discover magazine article) by Wally Smith, MD (CME = 1.5 hrs)
[View Session] Wally R. Smith, MD, Professor of Sickle Cell Disease University Distinguished Professor, Virginia Commonwealth University

10:45 am- 12:40 pm

Living My Best Life with Sickle Cell Disease. What Inspires You? – Interactive (CME = 2 hrs)
· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Jody Johnson, Cayenne Wellness

11:00 am – 12:15 pm

Breakout Session 1: Art
[View Session]

11:00 am – 12:15 pm

Breakout Session 2: Music
[View Session]

11:00 am – 12:15 pm

Breakout Session 3: Vision Board
[View Session]

11:00 am – 12:15 pm

Breakout Session 4: Writing/Journal
[View Session]

11:00 am – 12:15 pm

Breakout Session 5: Mindfulness (Breathwork and Movement)
[View Session]

11:00 am – 12:15 pm

Breakout Session 6: Nutrition/Cooking
[View Session]

11:00 am – 12:15 pm

Breakout Session 7: Gardening
[View Session]

1:30 pm -1:50 pm

Movement/Exercise by Marjorie DeJoie Brewer
[View Session]
· Marjorie Brewer Dejoie, M.D., MAD Fit

2:00 pm – 3:30 pm

Afternoon Session I: PsychoSocial: What’s All The Chatter About… Unconscious and Implicit Bias and Racism (CME = 1.5 hrs)
[View Session]

· Theopia Jackson, PhD., Program Chair, Clinical Psychology Degree, Saybrook University
· Stephen Nelson, Hackman Consulting
· Ulysse Guierrier, President, Sickle Cell Association of Ontario
· Ginger Davis, President, Sickle Cell/Thalassemia Patients Network, Inc. (SCTPN)
· Shirley D. Powell, ND
· Phillip Okwo, Catalyst Finance, Dow
· Dr. Jean Walrond Ph.D., President & COO, Research & Education, Sickle Cell Foundation of Alberta
· Pat Corley, RN, Registered Nurse, Nurse Educator

3:45 pm – 5:15 pm

Afternoon Session II: Modifying Therapies – Moderated by Eva Enechukwu (CME = 1.5 hrs)
[View Session]

· Eva Okereke-Enechukwu, Provider, Florida Sickle Cell Center
· Carolyn Hoppe, MD, Senior Medical Director, Clinical Science Global Blood Therapeutics
· Misty Williams
· Tynisha K. Hall, TynishaKCollectionLLC
· Adrienne Shapiro, Axis Advocacy
· LeKita Deal
· Felicia M. Hunt, MA, Sex Coach, 6EXCoach Sex coaching and sex education services
· Yvette Davis, Social Worker, Los Angeles County
· Kamille Linton, Medial Assistant , SC Warrior
· Mary Moore RN, RN/Living Benefits Specialist, Axis Advocacy
· Kadeem Gayle, Health Coach, Carisma
· Anthony Richardson, Fire safety Inspector, SCD
· Robert Brodie, PhD, Senior Psychologist supervisor, Patton State Hospital
· Marcus McKinley, SCCA, SOFWSCD, Indp Pt Advocate

5:30 pm – 7:00 pm

Young Adult Session (ages 18 – 35) – Embracing Possibilities Moderated by Calvanay Nunley and Servio Astacio (CME = 1.5 hrs)
[View Session]

· Calvanay Nunley, Director of Camp Super Star : Sickle Cell Camp in the Northern California/ Mentor/ Advocate, The Pull Up
· Servio Astacio, Contract Loan Processor, Independent Processing Network
· Aaron N Washington, Intern, SICKLE CELL CONSORTIUM
· Alexis Lewis, California State University Northridge
· Traci “Trai IcarT” Caudle, Artist
· Lathan Singleton, The Unspoken Hero Society
· Charon Simmons, Spokesperson, Sickle Cell Foundation of Orange County
· Lance Jasper Jones, Director, Jasper House Warriors Foundation, Inc.

8:00 pm – 9:30 pm

Benefit Concert featuring Dessy DiLauro and Ric’key Pageo of Parlor Social
[View Session]

Saturday, September 17

8:00 am – 8:10 am

Black Panther Moments & Community Engagement [View Session]

Cayenne Wellness Center Board Update – Shona Stephens, Board Chair
· Shona Stephens, MPH, Walden University

8:50 am  9:00 am

Award Presentations [View Session]

· Traci “Trai IcarT” Caudle, Artist
· Omeka Edwards
· Shirley Miller
· Pat Corley, RN, Registered Nurse, Nurse Educator
· Adrienne Shapiro, Axis Advocacy

9:30 am – 10:40 am

Morning Session I: Pat Corley Keynote Speaker Session – Embracing Possibilities [View Session]

· Shauna H. Whisenton, Manager, Sickle Cell Disease Community Engagement, American Society of Hematology

10:45 am – 12:15 pm

Morning Session: Sickle Cell 101 – Moderated by Zahra Pakbaz, MD [View Session]

· Zahra Pakbaz, MD
· Mia Robinson, President of the general assembly, Sickle Cell Community Consortium
· Gabrielle Rodgers, Art institute of Inland Empire
· Ifeyinwa (Ify) Osunkwo MD, MPH, Chief Patient Officer, SVP, Forma Therapeutics

10:50 am- 12:40 pm

Morning Session: Global Patient Panel [View Session]

· Eda Omur, Voices of Sicklecell
· Noel Bell, VP of Marketing & Communication, Sickle Cell Support Foundation of Jamaica
· Alexandra Burgos, Asociación Española de la Enfermedad Falciforme (ASAFE) [Sickle Cell Association of Spain] · Lwimba Kasongo, Advocate, SICKLECELL PATIENT AND ADVOCATE
· Gabriel Badejo, SCAGO (Sickle Cell Awareness Group of Ontario)
· Patrise Holden, PhD, CEO, The Language Key

12:15 pm – 1:45 pm

Afternoon Session: Emergency Department – Moderated by Henry Young, MD [View Session]

· Dominique Friend, Founder, Sickle International Family Coalition
· Henry Young
· Paula Tanabe, PhD, RN, FAEN, FAAN, Laurel Chadwick Distinguished Professor of Nursing, Professor, School of Medicine, Duke University
· Corrie Chumpitazi, Associate Professor of Pediatrics, Baylor College of Medicine

1:30 pm- 4:30 pm

Afternoon Session I: Possibilities Powered [See sessions below]

· Pam White, Investigations Specialist, Bridging the Gap-Adult Sickle Cell Foundtion
· La’Shardae Scott, MSW, CHES, CHW, Sickle Cell Project Director Region III, Sickle Cell Project of North West Ohio
· Marsha Treadwell, PhD, Clinical Scientist, Children’s Hospital Oakland Research Institute
· Misty Williams
· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Adrienne Shapiro, Axis Advocacy
· Kristyl Smith-Brown, Adjunct Professor, Glendale Community College and Cerritos Community College
· Carroll Joseph Brown, Director of FRP, Friends LA
· Ron Smith and Vivian Smith, Pastor, True Workers of the Holy Trinity House of Prayer
· Timotheus Hampton, Lead Civil Engineer, USACE SPK
· Terri Lynne Hampton
· Michael and Laura Wheeler
· Shamonica Wiggins and Dwight Mayes, Social Media Manager, Sickle Cell Community Consortium
· Ric’key Pageot, Artist
· Felicia M. Hunt, MA, Sex Coach, 6EXCoach Sex coaching and sex education services
· Norma Stoker-Mtume, MHS, MA MFT

2:00 pm – 4:00 pm

New Modifying Therapies and Curative Therapies – Moderated by Cage Johnson, MD [View Session]

· Cage S. Johnson, M.D., Professor Emeritus of Medicine and of Physiology and Biophysics, Keck School of Medicine University of Southern California
· James Griffin, Author Sickle Cell Advocate, Wisconsin
· James Taylor, MD, Howard University
· Kendra and Lord Cole, Parent representatives, Sickle Cell Disease Association of Illinois
· Mark Walters, MD, Director, blood and marrow transplant, UCSF Benioff Children’s Hospital Oakland

4:15 pm – 6:15 pm

Sickle Cell Trait – Moderated by Ward Hagar, MD [View Session]

Robert Hagar, Director, Adult Sickle Cell Center; Professor Internal Medicine (Dept of Pediatrics), UCSF, UCSF Benioff Children’s Hospital Oakland
· Farron Dozier, Writer “Inspirational”, Life of a
· Alexis A. Thompson, MD MPH
· Tomia Austin, MEd, DrPH, Executive Director of As One Foundation; Technical Advisor/Consultant for Sickle Cell Trait & Disease research, As One Foundation

Thursday, September 17

 View Sessions

7:30 AM-7:55 AM

Community Engagement
Speaker: Dominique Goodson

7:55 AM-8:45 AM

Movement Exercise: Stretching
Speaker: Eryn Young
Mild to moderate exercise can lead to improvements in a person’s muscle function and overall physical ability, and for some patients there are improvements in sleep, concentration and soci…Read More

8:40 AM-8:55 AM

California’s Gold – Welcome to California!

8:55 AM-9:10 AM

Welcome by Dr. Carolyn Rowley, PhD Executive Director at Cayenne Wellness Center
Speaker: Dr. Carolyn Rowley, PhD
Cayenne Wellness Center’s mission is “To increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” This mission is part of a broader vision of (1) a medical system which effectively addresses
View Sessions

9:10 AM-12:15 PM

Legislative Action Workshop
Speaker: Keith Quirolo, MD

12:20 PM-1:05 PM 

California’s Gold Discovers San Francisco
View Session

1:05 PM-1:35 PM

Medunik Sickle Cell Disease Videos
Speaker: Corey Hebert, MD

1:45 PM-3:35 PM

Afternoon Session I: Sickle Cell Trait Education and Awareness (CME/CEU)
Speaker: Rakhi Naik
The need to outreach and educate the public about Sickle Cell
Disease and Sickle Cell Trait statewide has always been one of our top priorities. This session is dedicated to Sickle cell trait (SCT) education.
Dozier. Farron Dozier has the Sickle Cell Trait and I experienced Trait Exe
View Session

3:35 PM-3:42 PM

California Gold Discovers Redondo Beach

3:45 PM-5:50 PM

Afternoon Session II: Clinical Trials for Sickle Cell Disease – Part I (CME/CEU) Moderated by Osbourne A. Blake, MD
Speaker: Osbourne Blake
View Session

5:55 PM-6:15 PM

California Gold Discovers San Diego
View Session

6:15 PM-7:00 PM

Candlelight Ceremony
Speaker: Sheila Marchbanks, MBA

7:05 PM-8:30 PM 

Evening Session: Young Adults (21-40) Moderated by Caleb Boaz and Jasmine Tarrant
Speakers: Caleb Boaz, Jasmyn Tarrant
View Session

Friday, September 18

View Session

7:30 AM-7:55 AM 

Community Engagement
Speaker: Dominique Goodson
View Session

8:00 AM-8:45 AM 

Movement Exercise: Yoga (Instructed by Yoga Daze with Dani Wallace)
Speaker: Danesha Wallace
Mild to moderate exercise can lead to improvements in a person’s muscle function and overall physical ability, and for some patients there are improvements in sleep, concentration and social interactions. When it comes to exercise, the best time of day to get in a workout session is one that y…
View Session

8:45 AM-9:00 AM

Dame Elizabeth Lifetime Achievement Award

9:00 AM-9:20 AM 

Welcome & Presentation of Awards
Speakers: Pat Corley, Sheila Marchbanks, MBA, Cage Johnson

Introduction to the 12th Annual SCD Educational Seminar: Global Approach to Sickle Cell Disease
Speaker: Corey Hebert, MD
Dr. Hebert will give the introduction of our 12th Annual Sickle Cell Disease Educational Seminar and discuss the theme “A Global Approach to Sickle Cell Disease”.

9:40 AM-10:50 AM

Morning Session I: SIckle Cell Disease – Reflections on the Experience of Becoming the First Ever UK Sickle Cell Nurse Specialist in 1979 (CME/CEU)
Speaker: Elizabeth Anionwu

10:55 AM-11:05 AM — View Sessions

California Gold Discovers Death Valley

11:05 AM-12:45 PM

Morning Session II: Living Well With Sickle Cell Disease (Moderated by Alexis Thompson, MD)
Speaker: Alexis Thompson
In this session, Dr. Thompson will moderate a panel of adult persons diagnosed with Sickle Cell Disease. Each person will reflect on the trials and growth in becoming a person “Living Well With Sickle Cell”.

Patient Panel:

12:45 PM-1:00 PM

California Gold Discovers Hollywood

1:00 PM-1:55 PM 

Afternoon Session I: Living With Sickle Cell Disease, Part II
Speaker: Adrienne Shapiro
View Session

2:00 PM-2:50 PM

Afternoon Session I: Summary of Lunch Presentations
Speaker: Wally R. Smith, MD

2:40 PM-2:50 PM

California Gold Discovers Pasadena/Rose Bowl

2:50 PM-4:05 PM — View Session

Afternoon Session II: Sickle Cell Disease and the Battle for Equality, Justice, and Respect (CME/CEU)
Speaker: Ahmar Zaidi
Dr. Ahmar Zaidi is a pediatric hematologist who focuses on the care
of people with sickle cell disease. He works at the Children’s Hospital of Michigan and is involved in research looking at pain in sickle cell disease patients. Dr. Zaidi will poignantly discuss the inhumanity and health
View Session

4:10 PM-5:30 PM

Afternoon Session III: ASH Updates on Sickle Cell Disease (CME/CEU)
Speaker: Alexis Thompson
View Session

5:35 PM-6:05 PM —

Welcome to California: Live from the Center of California
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
View Session

6:15 PM-6:35 PM

Community Engagement
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
Speaker: Dominique Goodson
View Session

6:35 PM-6:55 PM

California Gold Discovers Big Bear
View Session

7:00 PM-7:55 PM

Art Reception – Sponsored By Vertex/Crispr
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.

7:00 pm

Paul Pereria / Vertex

7:10 pm

Dr. Carolyn Rowley and Adrienne Shapiro (will introduce Hertz)

7:20 pm

The Unveiling — View Session

8:00 PM-9:30 PM

Network Reception: Do U Live Event – Hosted by DJ Moeskieno (sponsored by Novartis)

Saturday, September 19

View Session

7:30 AM-7:55 AM

Community Engagement
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
Speaker: Dominique Goodson
View Session

8:00 AM-8:40 AM

Movement Exercise: QiGong (Instructed by Carol Penn)
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
Speaker: Carol Penn
Mild to moderate exercise can lead to improvements in a person’s muscle function and overall physical ability, and for some patients there are improvements in sleep, concentration and soci
View Session

8:40 AM-9:00 AM

Terumo BCT (Patient Experience)
Speaker: Rona Wiggins, MSW
Ms. Wiggins will share with us her experience of receiving red blood cell exchange for transfusion management of her sickle cell disease.
View Session

9:00 AM-9:15 AM

Summary of the 12th Annual SCD Educational Seminar by Beverley Francis-Gibson, President of SCDAA
Speaker: Beverley Francis-Gibson
Ms Francis-Gibson will summarize the first two days of the Seminar along with giving us an update on all the happenings with SCDAA.
View Sessions

9:15 AM-10:05 AM

Morning Session I: The Brain and Sickle Cell Disease Part 2: Executive Function and Beyond. Morning Session I: Sickle Cell Disease: A Global Approach (CME/CEU)
Speaker: Eboni Lance

10:08 AM-10:16 AM

California Gold Discovers Central California

10:20 AM-12:55 PM

View Sessions

Morning Session II: Psycho-Social Topic: Understanding Mental Health in Sickle Cell Disease (CME/CEU)
Speaker: Charles Jonassaint
The reasons for mental health issues among those with sickle cell disease can vary widely. In general, the pain and issues related to the chronic symptoms of the condition can frequently cause mental health …
View Session

1:00 PM-2:00 PM

Afternoon Session I: Living With Sickle Cell Disease
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located. Working Lunch Breakouts (Please Join Your Chosen Breakout Session)
View Session

2:05 PM-2:50 PM

Afternoon Session I: Summary of Lunch Presentations
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
View Commercial

2:35 PM-2:47 PM

Welcome to California – Live from Watts Towers
View Session

2:50 PM-6:00 PM

Afternoon Session II: Treatment Therapies and Sickle Cell Topic: Treatment Therapies
Speaker: Adrienne Shapiro
Ms. Shapiro will moderate this session on both the newest FDA treatments created for Sickle Cell Disease along with promising pipeline therapies on the rise. Global Blood Therapeutics (GBT) Oxbryta (voxelotor) targets the abnormal hemoglobin that causes the disease. It prevents hemoglobin.

Thursday, September 6, 2018

– Farron Dozier – Sickle Cell Trait
– Elliot Vichinsky, MD – History of Sickle Cell
– Wally Smith, MD – The Challenges of Opioid Use and Prescribing: Building Bridges Between Patients and Providers
– Jon Hershon, MD – The Challenges of Opioid Use and Prescribing: Building Bridges Between Patients and Providers
– Ted Wun, MD and . Marsha Treadwell, PhD – New Therapies and Clinical Trials for Sickle Cell Disease