We at Cayenne Wellness Center are beyond excited to welcome you to the 17th Annual Sickle Cell Disease (SCD) Educational Summit! Whether you’re joining us in person or virtually, today marks the beginning of an empowering journey of connection, learning, and advocacy.
Our conference hub is live in the Cvent App—your go-to place for the full schedule, resources, and networking opportunities. This year’s summit is filled with dynamic speakers, groundbreaking sessions, and inspiring workshops designed to keep you at the forefront of SCD research, treatment, and community care.
Let’s come together to make this year’s summit the best one yet!
Important Reminders
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- Session Evaluation: Click here to share your feedback Your feedback helps us improve and ensure each session meets your needs.
-
- Event Survey: After the summit, please complete the full survey to help us grow and serve you better.
-
- Testimonials: We’d love to hear how you’re enjoying the summit! Share your thoughts with us, and you may be featured in future communications.
-
- Need Help? Email us at events@cayennewellness.org for support.
We at Cayenne Wellness Center are beyond excited to welcome you to the 17th Annual Sickle Cell Disease (SCD) Educational Summit! Whether you’re joining us in person or virtually, today marks the beginning of an empowering journey of connection, learning, and advocacy.
Our conference hub is live in the Cvent App—your go-to place for the full schedule, resources, and networking opportunities. This year’s summit is filled with dynamic speakers, groundbreaking sessions, and inspiring workshops designed to keep you at the forefront of SCD research, treatment, and community care.
Let’s come together to make this year’s summit the best one yet!
Important Reminders
-
- Session Evaluation: Click here to share your feedback Your feedback helps us improve and ensure each session meets your needs.
-
- Event Survey: After the summit, please complete the full survey to help us grow and serve you better.
-
- Testimonials: We’d love to hear how you’re enjoying the summit! Share your thoughts with us, and you may be featured in future communications.
-
- Need Help? Email us at events@cayennewellness.org for support.
Welcome to Day 2 of the 17th Annual Sickle Cell Disease (SCD) Educational Summit! We’re just getting started, and today is packed with even more exciting sessions and opportunities to connect. Dive into a powerful lineup of expert speakers, interactive workshops, and thought-provoking discussions designed to deepen your knowledge of SCD and amplify our collective impact. Let’s keep the momentum going as we continue to learn, collaborate, and push for positive change together!
View our Digital Program Book Here
Special Announcements
- Virtual Attendees: If you plan to attend breakout sessions today, you must use a laptop or PC. Please do not use a mobile device.
- Download the App: Access the summit through the Cvent App. Type in “17th Annual SCD Educational Summit” to log in and connect.
Doctor to Doctor Session
- Location: [Insert exact location here]
- Who’s Invited: Clarify if this session is open to all attendees, or specific groups (doctors, clinicians, etc.)
- Registration: Please register on Eventbrite in advance, or check in with the Tech Team at the back of the room.
Sponsors Thank You
We extend our heartfelt thanks to all of our sponsors for their generous support. Your contributions make this summit possible. Special recognition is given by sponsorship level: Ruby, Platinum, Gold, Silver, and Community Partners.
Celebration of Life (Tonight)
Please join us this evening for the Celebration of Life. Together, we will honor our community and uplift the legacies that inspire us. [Insert time and location details here]
Scar Stories
Scar Stories will take place during today’s program. This powerful exhibit and discussion highlights the resilience of warriors living with SCD. [Insert time and location details here] We encourage all attendees to participate and engage with this unique experience.
Speaker Check-In Reminder
All speakers must check in with the Tech Team 20 minutes before their scheduled session. Please plan accordingly to ensure a smooth experience for all attendees.
Day 2 – Thursday, September 18, 2025
| Time | Session |
|---|---|
| 7:30 AM | Breakfast and Registration [San Jose Ballroom] |
| 8:30 AM | Prayer – Rev. Eugene Williams III |
| 8:35 AM | Welcome – Cayenne Wellness Center – Carolyn Rowley, PhD |
| 8:40 AM | Welcome – Axis Advocates – Adrienne Shapiro |
| 8:45 AM | Mayor of San Jose |
| 8:50 AM | Sickle Cellness (Team Building) with Brain Power Wellness |
| 9:00 AM | Session: Community Efforts and Pain (Moderators – DeMitrious Wyant & Nivia Charles) |
| 9:15 AM | Music Therapy – Samuel Rodgers Melnicktak, MT-BC |
| 9:45 AM | The Presence Study – Kadeem Gayle, DMH, MFA |
| 10:15 AM | Advocacy Programs – Axis Advocates (Adrienne Shapiro), Sickle Cell Medical Advocacy Inc. (Simone Uwan, MD), Advancing Sickle Cell Advocacy Project (Kemba Gosier) |
| 10:45 AM | Acupuncture – Shiu-Lin Tsai, MD, FAAP [Guadalupe] |
| 11:20 AM | Cell (Breakout) Rooms [Willow Glen 1]: Music Therapy – Samuel Rodgers Melnick, MT-BC [Willow Glen 2]: The Presence Study – Kadeem Gayle, DMH, MFA [Willow Glen 3]: Advocacy Programs – Axis Advocates; Sickle Cell Medical Advocacy; Advancing Sickle Cell Advocacy Project [Guadalupe]: Acupuncture – Shiu-Lin Tsai, MD |
| 11:55 AM | Main Room [San Jose Ballroom] |
| 12:15 PM | [Salon 5 & 6] Sponsored Lunch & Learn: Vertex Gene Therapy Overview for Sickle Cell Disease – Taylor Francis |
| 1:45 PM | Session: Shift in The Management of Pain 360 |
| 1:45 PM | Sickle Cellness (Team Building) with Brain Power Wellness [San Jose Ballroom] |
| 2:00 PM | Moderators – Adrienne Shapiro & Derek Robertson |
| 2:15 PM | Pharmacist Discussion: Moving away from what warriors know works – David Dadiomov, PharmD, BCPP |
| 2:45 PM | Q & A |
| 3:00 PM | Political & Cultural Lens on Drug Use; Non-opioid Alternatives for Acute Pain – Julie Kanter, MD |
| 3:30 PM | Q & A |
| 3:45 PM | Discussion: What if the meds don’t work and physicians’ hands are tied? Speakers: Ayana Johnson & Stephannie Starr; Noah James & Cory Lewis; Amyre Carter & Scott Craddolph; Max Jordan Nguemeni, MD & Artangela Henry, DNP, APRN, AGACNP-BC, FNP-C, LSSYB |
| 4:15 PM | Q & A |
| 4:30 PM | Community Discussion: What have we learned? What are the takeaways? |
| 4:45 PM | Wrap Up – Pat Corley, RN |
| 5:00 PM | Celebration of Life – Sheila Marchbanks, MBA, MBA & Felicia Hunt, PsyD |
| 6:00 PM | HCP Only Dinner & Session (Doctor to Doctor: What It’s Like to Live With and Treat SCD) |
| 6:30 PM | Game Night, Danny’s Photo Booth, and Finger Food hosted by Axis Advocates [Salon 5 & 6] |
Day 2 – HCP Track (Evening, Oakland)
| Time | Session |
|---|---|
| 6:00 PM | Doctor to Doctor: What It’s Like to Live With and Treat Sickle Cell? Moderators: Amie Patel, DO & Ward Hagar, MD |
| 6:00 PM | Agios Sponsored Dinner [Scott’s, 2 Broadway, Jack London Square, Oakland, CA 94607] |
| 6:30 PM | Sickle Cell Disease Acute and Chronic Pain Management – Amie Patel, DO; Ward Hagar, MD (Moderators) |
| 7:00 PM | Real Talk, Real Pain: Perspectives from Physicians Living with Sickle Cell Disease – Titilope Fasipe, MD; Simone Uwan, MD; Donnell Ivy, MD; Tandua Washington, MD, FAAP, DABOM; Marjorie Dejoie Brewer, MD; Musonda Mwilwa, MD; Halimat Shadia-Owolobi Olaniyan, MD |
| 8:00 PM | Sickle Cell Pledge |
| 8:10 PM | Networking |
| 8:30 PM | Adjourned |
