Patient Hospital Advisory Board

RFA: Sickle Cell Disease Hospital Patient Advisory Board Application

 

Cayenne Wellness Center invites adult patients diagnosed with sickle cell disease, age 21 and over, to have a seat at the table – to become a hospital advisory board member at a California hospital.

Download the application materials

Since the year 2000, Cayenne Wellness Center has collaborated with hospitals throughout California to improve care and follow evidenced-based guidelines for the management and treatment of sickle cell disease. This program is a novel approach to facilitate the voices of sickle cell disease awareness and advocacy – in the room where much happens, a seat at the table where the development of hospital policies and practices begins.

 

Eligibility

Cayenne Wellness Center seeks to select eleven (11) patients diagnosed with sickle cell disease throughout California as a Hospital Patient Advisory Board member at a major hospital. The applicant must be:

 

  • Over 21 years of age and diagnosed with sickle cell disease, any phenotype (SS, SC, Beta Thalassemia, etc)
  • Must be a high school
  • Must have a reliable car, a valid driver’s license, and current auto
  • Must live within 25 miles of the hospital you desire to be a Patient Hospital Advisory Board
  • Must be able to commit at least 5 -7 hours a month for one

Deadline & Technical Assistance

Due Date: The due date for applications is November 30, 2020 at 11:59 pm (PST). Applications submitted after this deadline will not be considered. Each completed application should be sent to: Program Manager at info@cayennewellness.org with two attachments titled: Cover Letter and Letter of Support/Letter of Reference AND a four-minute video explaining why you should be selected.

Technical Assistance: A technical assistance webinar will be held on Monday, November 16, 2020 at 6:00 pm. Email info@cayennewellness.org your full name and the hospital you’re interested in becoming a Patient Hospital Advisory Board member. Subject line to read: Technical Assistance for SCD PHABM. You will then be forwarded a link to the webinar.

Training and Development

  1. Selected applicants must be available to participate in monthly training and development meetings, hospital board meetings, and one-on-one meetings with the project
  2. Selected applicants are required to attend the following monthly meetings: training and development meeting with the project manager, project lead, and all applicants (2 hours); hospital board meetings at the hospital you will be assigned to (approximately 2 hours); and one-on-one meeting with your project manager (1 hour)
  3. Selected applicants will be required to present board meeting updates during the monthly training and development

 

Hospitals in California

We will be selecting applicants that reside in the following areas: San Diego, Loma Linda, San Bernardino, Los Angeles, Fresno, and Sacramento. Additional cities and hospitals will be added at a later time.

  • San Diego – two applicants for the following hospitals: Scripps Health (1) and UC San Diego Health (1)
  • Loma Linda – one applicant for the following hospital: Loma Linda Medical Center (1)
  • San Bernardino – one applicant for the following hospital: Community Hospital of San Bernardino (1)
  • Los Angeles – three applicants for the following hospitals: Cedar Sinai (1),
  • Ronald Reagan UCLA Medical Center (1), and Huntington Hospital (1)
  • Fresno – two applicants for the following hospitals: St. Agnes Medical Center (1) and
  • Community Regional Hospital (1)
  • Sacramento – one applicant for the following hospital: UC Davis Medical Center (1) and Sutter Medical Center (1)
  • Oakland – one applicant for the following hospital: UCSF Benioff (1)

Thank you. All the best to those applying.

Peace

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