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2025 SCD Summit

September 17-20, 2025 | San Jose, CA

Welcome!

Mary Alcocer

Dorian Archie

Etta Carter was a member of the planning committee for the Cayenne Wellness Center Summit.

Etta Carter

Felica Calloway

Carley Cole-Cavins

Pat Corley, RN

Jody Johnson

ouise Bennett Marchbanks is a member of the planning committee for the Cayenne Wellness Center Summit.

Sheila Marchbanks

Amie Patel

Carolyn Rowley, PhD

Adrienne Shapiro is a member of the planning committee for the Cayenne Wellness Center Summit

Adrienne Shapiro

Brianna Smith

Wanda Williams

Thank you for your interest in supporting the 17th Annual Sickle Cell Disease Educational Summit hosted by Cayenne Wellness Center (CWC). As this Summit has grown in scope, visibility, and significance within the SCD community, so have the demands associated with its successful execution.
We are deeply grateful for the generosity of all our past, present, and future sponsors whose support makes this vital event possible. Before selecting your level of sponsorship, please review our current policies below.

Important Sponsorship Policy Update:

To ensure that the Summit continues to reflect its values of equity, access, and community-centered care, we have updated our sponsorship structure:
  1. Industry Sponsorship Levels (including pharmaceutical companies, biotech firms, and healthcare corporations) are invited and eligible to sponsor only at the following levels:
    1. Silver;
    2. Gold;
    3. Platinum;
    4. Ruby; or
    5. Diamond.
  2. The Community Sponsorship Level is exclusively reserved for Community-Based Organizations (CBOs), foundations, grassroots initiatives, and similar entities whose mission aligns with community empowerment and health equity.
These levels are designed to match the scope and scale of industry contributions and provide the appropriate visibility and engagement opportunities.
While we welcome and appreciate all forms of financial support, Cayenne Wellness Center (CWC) can no longer independently shoulder the full logistical and financial burden of the Summit. This event’s high quality, broad impact, and increasing complexity demand a collaborative approach to funding and resource sharing.
We thank you for understanding and for supporting our mission to advance care, education, and empowerment for individuals with sickle cell disease.

Please find the level of sponsorships and their benefits below:

Click here to download the 2025 Sponsorship Packet
Day Date Time Session
DAY 1 Wednesday, September 17, 2025 11:00 AM Registration Opens
DAY 1 Wednesday, September 17, 2025 12:00 PM Lunch: The Tale of L-Glutamine
DAY 1 Wednesday, September 17, 2025 12:30 PM Drummers and Dancers – Kuumba LLC
DAY 1 Wednesday, September 17, 2025 12:50 PM Pain: Seen and Unseen (Video) & Scar Stories Montage
DAY 1 Wednesday, September 17, 2025 1:00 PM Thank You to Our Sponsors
DAY 1 Wednesday, September 17, 2025 1:05 PM Cassandra Trimnell – SC101
DAY 1 Wednesday, September 17, 2025 1:15 PM Sickle Cellness (Team Building)
DAY 1 Wednesday, September 17, 2025 1:30 PM Moderators Introduction
DAY 1 Wednesday, September 17, 2025 1:50 PM Five FDA Approved Modifying Therapies – Presentations
DAY 1 Wednesday, September 17, 2025 1:50 PM Hydroxyurea – Charles E Otieno, MD
DAY 1 Wednesday, September 17, 2025 2:00 PM L-Glutamine – Charlie Stark, PharmD
DAY 1 Wednesday, September 17, 2025 2:10 PM Red Blood Cell Exchange – Terumo – Melissa Anderson, MD
DAY 1 Wednesday, September 17, 2025 2:20 PM Introduce the Survey – Brianna Smith
DAY 1 Wednesday, September 17, 2025 2:30 PM Q & A
DAY 1 Wednesday, September 17, 2025 2:45 PM Emerging Therapies (Modifying)
DAY 1 Wednesday, September 17, 2025 2:45 PM Agios Pharmaceuticals
DAY 1 Wednesday, September 17, 2025 3:00 PM Fulcrum Therapeutics
DAY 1 Wednesday, September 17, 2025 3:15 PM Novo Nordisk
DAY 1 Wednesday, September 17, 2025 3:30 PM Q & A
DAY 1 Wednesday, September 17, 2025 3:45 PM Two FDA Approved Gene Therapies – Presentations
DAY 1 Wednesday, September 17, 2025 3:45 PM Casgevy (Vertex)
DAY 1 Wednesday, September 17, 2025 4:00 PM Lyfgenia (bluebird bio)
DAY 1 Wednesday, September 17, 2025 4:15 PM Q & A
DAY 1 Wednesday, September 17, 2025 4:30 PM Emerging Curative Therapies – Presentations
DAY 1 Wednesday, September 17, 2025 4:30 PM Beam Therapeutics
DAY 1 Wednesday, September 17, 2025 4:40 PM Kamau Therapeutics
DAY 1 Wednesday, September 17, 2025 4:50 PM Q & A
DAY 1 Wednesday, September 17, 2025 5:15 PM Break
DAY 1 Wednesday, September 17, 2025 6:30 PM Dinner
DAY 1 Wednesday, September 17, 2025 8:00 PM Adjourned

 

Day Date Time Session
DAY 2 Thursday, September 18, 2025 7:30 AM Breakfast and Registration
DAY 2 Thursday, September 18, 2025 8:30 AM Prayer – Eugene Williams
DAY 2 Thursday, September 18, 2025 8:35 AM Welcome – CWC – Rowley
DAY 2 Thursday, September 18, 2025 8:40 AM Welcome – Axis Advocacy – Shapiro
DAY 2 Thursday, September 18, 2025 8:45 AM Sickle Cellness (Team Building)
DAY 2 Thursday, September 18, 2025 9:00 AM Session: Community Efforts and Pain
DAY 2 Thursday, September 18, 2025 9:15 AM Music Therapy – Samuel Rodgers Melnick
DAY 2 Thursday, September 18, 2025 9:45 AM The Presence Trial
DAY 2 Thursday, September 18, 2025 10:15 AM Various Advocacy Programs – Axis Advocacy, MEC, and ASAP
DAY 2 Thursday, September 18, 2025 10:45 AM Acupuncture
DAY 2 Thursday, September 18, 2025 11:55 AM Main Room
DAY 2 Thursday, September 18, 2025 12:15 PM Lunch and Networking
DAY 2 Thursday, September 18, 2025 1:45 PM Session: Shift in The Management of Pain 360
DAY 2 Thursday, September 18, 2025 1:45 PM Sickle Cellness (Team Building)
DAY 2 Thursday, September 18, 2025 2:00 PM Moderators – Adrienne Shapiro and Teanika Hoffman
DAY 2 Thursday, September 18, 2025 2:15 PM Pharmacist discussion: Moving away from what warriors know works – David Dadiomovat, PharmD
DAY 2 Thursday, September 18, 2025 2:45 PM Q&A
DAY 2 Thursday, September 18, 2025 3:00 PM Political and cultural lens on drug use, non-opioid alternatives for acute pain – Julie Kanter, MD
DAY 2 Thursday, September 18, 2025 3:30 PM Q&A
DAY 2 Thursday, September 18, 2025 3:45 PM Community Discussion: What if the meds don’t work and physicians’ hands are tied?
DAY 2 Thursday, September 18, 2025 4:15 PM Q&A
DAY 2 Thursday, September 18, 2025 4:30 PM What have we learned? What are the takeaways?
DAY 2 Thursday, September 18, 2025 4:45 PM Wrap Up – Pat Corley, RN
DAY 2 Thursday, September 18, 2025 5:00 PM Celebration of Life
DAY 2 Thursday, September 18, 2025 6:00 PM HCP Only Dinner and Session
DAY 2 Thursday, September 18, 2025 6:30 PM Game Night and Finger Food
DAY 3 Friday, September 19, 2025 7:30 AM Breakfast and Registration
DAY 3 Friday, September 19, 2025 8:30 AM Prayer – Christopher Archie
DAY 3 Friday, September 19, 2025 9:00 AM Keynote: Science of Pain
DAY 3 Friday, September 19, 2025 9:15 AM What is Pain? History – Madhav Vissa, MD
DAY 3 Friday, September 19, 2025 9:45 AM The Pathophysiology of Pain – John Woods, MD
DAY 3 Friday, September 19, 2025 10:15 AM Difference between Acute, Chronic, and Neuropathic Pain – Jackie Carter
DAY 3 Friday, September 19, 2025 10:45 AM Treatments for Acute, Chronic, and Neuropathic Pain – Amie Patel, DO and Warriors
DAY 3 Friday, September 19, 2025 11:15 AM Wrap Up – Amie Patel, DO
DAY 3 Friday, September 19, 2025 12:00 PM Lunch and Networking
DAY 3 Friday, September 19, 2025 1:45 PM Session: Ten Redefined? by Hertz Nazaire
DAY 3 Friday, September 19, 2025 1:45 PM Sickle Cellness (Team Building)
DAY 3 Friday, September 19, 2025 2:00 PM Ten Redefined? Moderator: Titilope Fasipe, MD, Donnell Ivy, MD, Sheila Marchbanks, Juliet Romeo
DAY 3 Friday, September 19, 2025 2:15 PM How do you report pain? How do you express pain? Is there a need to use a different scale?
DAY 3 Friday, September 19, 2025 2:45 PM Q & A
DAY 3 Friday, September 19, 2025 3:00 PM HCPs and their journey with pain management and SCD – Jeffrey Glassberg, MD, Biree Andemarian, MD, Wally Smith, MD
DAY 3 Friday, September 19, 2025 3:30 PM Q & A
DAY 3 Friday, September 19, 2025 3:45 PM What the community wants medical professionals to know about their pain and experience
DAY 3 Friday, September 19, 2025 4:15 PM Q & A
DAY 3 Friday, September 19, 2025 4:30 PM Wrap Up
DAY 3 Friday, September 19, 2025 5:00 PM Adjourned
DAY 3 Friday, September 19, 2025 6:00 PM Award Ceremony and Benefit Concert
DAY 4 Saturday, September 20, 2025 8:00 AM Breakfast and Registration
DAY 4 Saturday, September 20, 2025 9:00 AM Keynote: Exploring Pain Management
DAY 4 Saturday, September 20, 2025 12:00 PM Lunch and Networking
DAY 4 Saturday, September 20, 2025 1:45 PM Sickle Cellness (Team Building)
DAY 4 Saturday, September 20, 2025 2:00 PM Session: Duality of Pain
DAY 4 Saturday, September 20, 2025 2:00 PM Moderators: Steve Soliz and Scott Soliz
DAY 4 Saturday, September 20, 2025 2:15 PM What is a pain plan? or Elements of an Effective Pain Plan (IPP) – Pat Corley, RN
DAY 4 Saturday, September 20, 2025 2:45 PM The Pain Really Is That BAD!!!
DAY 4 Saturday, September 20, 2025 3:15 PM Q & A
DAY 4 Saturday, September 20, 2025 3:30 PM Duality of Pain (maumivu) – Featuring Drumming by Kuumba
DAY 4 Saturday, September 20, 2025 3:45 PM Roundtable: Turning Your Breakdowns into Breakthroughs
DAY 4 Saturday, September 20, 2025 4:15 PM Open Mic / Chatting
DAY 4 Saturday, September 20, 2025 4:30 PM Down Home Fireside Chat – Pat Corley, RN & Sheila Marchbanks
DAY 4 Saturday, September 20, 2025 5:00 PM Q & A
DAY 4 Saturday, September 20, 2025 5:15 PM Sickle Cell Pledge
DAY 4 Saturday, September 20, 2025 5:30 PM Adjourned
DAY 5 Sunday, September 21, 2025 9:00 AM Breakfast with the Panthers
DAY 5 Sunday, September 21, 2025 10:00 AM Outing
DAY 5 Sunday, September 21, 2025 1:00 PM Return

As we continue to prepare for the upcoming event, we are working hard to identify your questions and provide answers. Check here often for new FAQs, and if you need additional assistance, email our Event Team at Events(at)CayenneWellness.org.

I’m attending the event virtually. How do I access the event?

To join the virtual event, you can either join via your web browser on a laptop/computer or mobile device, or download the event app and join sessions from within the app.

To view on computer click the link below:

Computer Link

To view on the mobile app click the link below:

Mobile App

I’m attending in-person. Can I also view sessions virtually?

Yes, you can! As long as you’re registered for the event, you can download the event app, or access the event website to view any session, from the comfort of your hotel room, or from anywhere else as long as there’s an internet connection.

To view on computer click the link below:

Computer Link

To view on the mobile app click the link below:

Mobile App

Will I need to leave a credit card?

Yes.

PLEASE READ ABOUT *INCIDENTAL HOTEL HOLD*

  • If Cayenne Wellness Center covers your rooms, the hotel will require a soft incidental hold. Don’t be alarmed. This hold will temporarily remove the money from your account but will be replaced within a few days. Please bring a credit card that can hold the fees temporarily. The fees may be as much as $100/day or more.

I am a Warrior or Caregiver. How do I book a hotel room?

If you are a Warrior or Caregiver and you’re attending the event in-person hotel is included in your in-person fee (not commuter), and you should select the in-person registration.

I need a plane or other ticket to get to the event. How do I request that?

Transportation to and from the event is the responsibility of the attendee. Please contact the Cayenne staff with additional questions regarding transportation.

How do I register for the event?

You can register for the 17th Annual Sickle Cell Disease Educational Seminar via the Cayenne website (see the registration images above) or via the email you may have received as an invitation to register.

I made a mistake on my registration, how do I change it?

To change your registration, locate the confirmation email you received. Once located, find your confirmation number, highlight it, and click ‘control-c’. At the bottom of your email, you’ll see a “View or Modify your registration” link. Click that link, and enter your confirmation number to modify your registration:

How much does the event cost?

The price of the event depends on a number of factors, including your attendee category.

I want to register for the virtual event. How do I do that?

Registering for the virtual event is fast and easy – simply click the virtual event image shown on the page above to get started.

I want to attend in person. How do I register?

Registering for the in-person event is fast and easy – simply click the in-person event image shown on the page above to get started.

How do I cancel my registration?

To cancel your registration, locate your confirmation email, copy your confirmation number, and click the ‘View or modify your registration’ link at the bottom of the email. Once you’ve pasted your confirmation number and logged in, scroll to the bottom of the screen. You’ll see a ‘Cancel Registration’ button – click that button and follow the instructions to process your cancellation. Note that Cvent will automatically refund any fees paid directly to the form of payment you used during registration.

San Jose Marriott will be the location of the 17th Annual SCD Educational SummitThe 17th Annual Sickle Cell Disease Educational Summit will be held at the San José Marriott.

The address is: 301 S Market St, San Jose, CA 95113, USA.

For Sickle Cell Warriors and Caregivers:

Your fee of $300.00 includes your hotel stay, meals, and registration. Please note that you will have to room with another Warrior. The Program Manager will contact you shortly after registration.

For Others:

Your registration fee does not include lodging. We ask that you contact the hotel at 408-280-1300 and book your room under the Cayenne Wellness Center block for discount pricing.

Use the link below to book your group rate for the 17th Annual Sickle Cell Disease Educational Summit!

Click Here To Access The Group Rate for the 17th Annual SCD Educational Summit

For more information, feel free to contact the Events Team. Thank you.

Celebration of Life

For questions, please get in touch with Planning Committee Member  Sheila Marchbanks.