Welcome to Day 2 of the 16th Annual Sickle Cell Disease (SCD) Educational Summit! We’re just getting started, and today is packed with even more exciting sessions and opportunities to connect. Dive into a powerful lineup of expert speakers, interactive workshops, and thought-provoking discussions designed to deepen your knowledge of SCD and amplify our collective impact. Let’s keep the momentum going as we continue to learn, collaborate, and push for positive change together!
View our Digital Program Book Here.
Special Announcements
Virtual attendees, if you plan to attend breakout sessions today, you must use a laptop or pc. Don’t use a mobile device.
Download the App – Please also download the Cvent App. Then, type in the 16th Annual SCD Educational Summit to access our event.
Breakout Rooms—To join breakout rooms, please check the chat if you are attending virtually or check the session descriptions and the link to join the breakout rooms.
The lineup for the day is below. Also remember:
Thursday, September 19, 2024
Room: Salon D
7:30 am – 9:30 am – Breakfast and Registration
8:30 am – Welcome to California
8:40 am – Prayer – Vivianne Smith
8:45 am – Welcome by Regina Hartfield (SCDAA)
8:50 am – Welcome by Dr. Carolyn Rowley
8:55 am – Welcome by Adrienne Shapiro
9:00 am – 12:00 pm – Morning Session: Wise Guides: Sickle Cell
Community Highlights
9:00 am_Moderator: Annie Womack
9:10 am_Session 1: Update on ER Care. Highlight of what others are doing in the community. Paula Tanabe’s ER template
9:40 am_Session 2: IASCNAPA Nurses Bootcamp. Yvonne Carroll, JD, RN
10:00 am_Session 3: Care for the Incarcerated – Michael Matthews and Zemoria Brandon
10:30 am_Session 4: Advocacy and Rare Disease Day Ashley Valentine and Arielle Krahenbuhl/SickCells
10:45 am_Questions and Answers
Breakout Rooms/Streaming- 11:00 – 11:35 am
Salon C – ER Caroline Freirmuth, MD EDSC3
Salon F – Advocacy
Salon B – Care for the Incarcerated
Salon A – Nurses Bootcamp
Main Room for Summary (Salon D)
12:00 – 2:00 pm – Lunch (no exercise)
12:00 – 1:00 pm – Sponsored Lunch by Pfizer (Salon G)
12:00 – 12:40 pm – Exercise/Streamed – Stretching by Samira Jackson Room Pier 1
12:40 – 2:00 pm – Lunch (for those that exercised)
2:00 – 5:00 pm – Afternoon Session: Sickle Cell Trait Room Salon D
2:00 pm Moderator: Farron Dozier, TBD
2:10 pm Session: Sickle Cell Trait
2:10 pm What is SC Trait? What should you do if you want to know your trait? – Kendra Cole
2:40 pm STAC Update in CA and Preparations for a National Initiative – Carley “Elle” Cole and Chase Jamele
3:10 pm – Genetic Counseling – Andrew Campbell, MD (TBD)
3:40 pm – Break
4:00 pm – Session: Newborn Screening
4:00 pm Newborn Screening in the USA – How It Happened?; Per State, and how it became effectively mandated – Marilyn Gaston, MD
4:30 pm – International Update – Cheedy Jaja
5:00 pm Q & A
5:15 pm – 6:00 pm – Celebration of Life – Sheila Marchbanks, MBA and Felicia Hunt, PsyD TBD
6:30 pm – 8:30 pm – Game Night and Finger Food hosted by Axis Advocacy – Salon A & B w/Photo Booth – This session is not streamed.
Hertz Nazaire Exhibit Opened from 9 – 5 pm (No Food or Drink Allowed)
