2020 Seminar Content
Thursday, September 17
7:30 AM-7:55 AM
Speaker: Dominique Goodson
7:55 AM-8:45 AM
Speaker: Eryn Young
Mild to moderate exercise can lead to improvements in a person’s muscle function and overall physical ability, and for some patients there are improvements in sleep, concentration and soci…Read More
8:40 AM-8:55 AM
California’s Gold – Welcome to California!
8:55 AM-9:10 AM
Welcome by Dr. Carolyn Rowley, PhD Executive Director at Cayenne Wellness Center
Speaker: Dr. Carolyn Rowley, PhD
Cayenne Wellness Center’s mission is “To increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” This mission is part of a broader vision of (1) a medical system which effectively addresses
9:10 AM-12:15 PM
Speaker: Keith Quirolo, MD
12:20 PM-1:05 PM
California’s Gold Discovers San Francisco
1:05 PM-1:35 PM
Medunik Sickle Cell Disease Videos
Speaker: Corey Hebert, MD
1:45 PM-3:35 PM
Afternoon Session I: Sickle Cell Trait Education and Awareness (CME/CEU)
Speaker: Rakhi Naik
The need to outreach and educate the public about Sickle Cell
Disease and Sickle Cell Trait statewide has always been one of our top priorities. This session is dedicated to Sickle cell trait (SCT) education.
Dozier. Farron Dozier has the Sickle Cell Trait and I experienced Trait Exe
3:35 PM-3:42 PM
California Gold Discovers Redondo Beach
3:45 PM-5:50 PM
Speaker: Osbourne Blake
5:55 PM-6:15 PM
California Gold Discovers San Diego
6:15 PM-7:00 PM
Speaker: Sheila Marchbanks, MBA
7:05 PM-8:30 PM
Evening Session: Young Adults (21-40) Moderated by Caleb Boaz and Jasmine Tarrant
Speakers: Caleb Boaz, Jasmyn Tarrant
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Friday, September 18
7:30 AM-7:55 AM
Speaker: Dominique Goodson
8:00 AM-8:45 AM
Movement Exercise: Yoga (Instructed by Yoga Daze with Dani Wallace)
Speaker: Danesha Wallace
Mild to moderate exercise can lead to improvements in a person’s muscle function and overall physical ability, and for some patients there are improvements in sleep, concentration and social interactions. When it comes to exercise, the best time of day to get in a workout session is one that y…
8:45 AM-9:00 AM
Dame Elizabeth Lifetime Achievement Award
View Sessions
9:00 AM-9:20 AM
Welcome & Presentation of Awards
Speakers: Pat Corley, Sheila Marchbanks, MBA, Cage Johnson
Introduction to the 12th Annual SCD Educational Seminar: Global Approach to Sickle Cell Disease
Speaker: Corey Hebert, MD
Dr. Hebert will give the introduction of our 12th Annual Sickle Cell Disease Educational Seminar and discuss the theme “A Global Approach to Sickle Cell Disease”.
View Sessions
9:40 AM-10:50 AM
Speaker: Elizabeth Anionwu
10:55 AM-11:05 AM
California Gold Discovers Death Valley
11:05 AM-12:45 PM
Morning Session II: Living Well With Sickle Cell Disease (Moderated by Alexis Thompson, MD)
Speaker: Alexis Thompson
In this session, Dr. Thompson will moderate a panel of adult persons diagnosed with Sickle Cell Disease. Each person will reflect on the trials and growth in becoming a person “Living Well With Sickle Cell”.
Patient Panel:
12:45 PM-1:00 PM
California Gold Discovers Hollywood
1:00 PM-1:55 PM
Afternoon Session I: Living With Sickle Cell Disease, Part II
Speaker: Adrienne Shapiro
2:00 PM-2:50 PM
Afternoon Session I: Summary of Lunch Presentations
Speaker: Wally R. Smith, MD
2:40 PM-2:50 PM
California Gold Discovers Pasadena/Rose Bowl
2:50 PM-4:05 PM
Speaker: Ahmar Zaidi
Dr. Ahmar Zaidi is a pediatric hematologist who focuses on the care
of people with sickle cell disease. He works at the Children’s Hospital of Michigan and is involved in research looking at pain in sickle cell disease patients. Dr. Zaidi will poignantly discuss the inhumanity and health
4:10 PM-5:30 PM
Afternoon Session III: ASH Updates on Sickle Cell Disease (CME/CEU)
Speaker: Alexis Thompson
5:35 PM-6:05 PM
Welcome to California: Live from the Center of California
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
6:15 PM-6:35 PM
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
Speaker: Dominique Goodson
6:35 PM-6:55 PM
California Gold Discovers Big Bear
7:00 PM-7:55 PM
Art Reception – Sponsored By Vertex/Crispr
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
7:00 pm Paul Pereria / Vertex
7:10 pm Dr. Carolyn Rowley and Adrienne Shapiro (will introduce Hertz)
7:20 pm The Unveiling
8:00 PM-9:30 PM
Network Reception: Do U Live Event – Hosted by DJ Moeskieno (sponsored by Novartis)
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Saturday, September 19
7:30 AM-7:55 AM
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
Speaker: Dominique Goodson
8:00 AM-8:40 AM
Movement Exercise: QiGong (Instructed by Carol Penn)
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
Speaker: Carol Penn
Mild to moderate exercise can lead to improvements in a person’s muscle function and overall physical ability, and for some patients there are improvements in sleep, concentration and soci
8:40 AM-9:00 AM
Terumo BCT (Patient Experience)
Speaker: Rona Wiggins, MSW
Ms. Wiggins will share with us her experience of receiving red blood cell exchange for transfusion management of her sickle cell disease.
9:00 AM-9:15 AM
Summary of the 12th Annual SCD Educational Seminar by Beverley Francis-Gibson, President of SCDAA
Speaker: Beverley Francis-Gibson
Ms Francis-Gibson will summarize the first two days of the Seminar along with giving us an update on all the happenings with SCDAA.
9:15 AM-10:05 AM
Speaker: Eboni Lance
10:08 AM-10:16 AM
California Gold Discovers Central California
10:20 AM-12:55 PM
Speaker: Charles Jonassaint
The reasons for mental health issues among those with sickle cell disease can vary widely. In general, the pain and issues related to the chronic symptoms of the condition can frequently cause mental health …
1:00 PM-2:00 PM
Afternoon Session I: Living With Sickle Cell Disease
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
Working Lunch Breakouts (Please Join Your Chosen Breakout Session)
2:05 PM-2:50 PM
Afternoon Session I: Summary of Lunch Presentations
Location: Please Note!! All event times are PST. Whova automatically updates your timezone based on where your computer is located.
2:35 PM-2:47 PM
Welcome to California – Live from Watts Towers
2:50 PM-6:00 PM
Afternoon Session II: Treatment Therapies and Sickle Cell Topic: Treatment Therapies
Speaker: Adrienne Shapiro
Ms. Shapiro will moderate this session on both the newest FDA treatments created for Sickle Cell Disease along with promising pipeline therapies on the rise.
Global Blood Therapeutics (GBT) Oxbryta (voxelotor) targets the abnormal hemoglobin that causes the disease. It prevents hemoglobin.
