2023 Seminar Content
Wednesday September 13, 2023
Past, Present, and Future: The Therapies
1:30 PM-2:00 PM
[View Session]
Keith Quirolo, MD
SC Advocate
SC101 & Cayenne Wellness Center
Five (5) FDA-Approved Therapies
2:00 PM-3:15 PM
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Pfizer Inc.
Pfizer
Emerging Therapies
3:15 PM-4:15 PM
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Agios Pharmaceuticals
Gene Therapies
4:15 PM-5:45 PM
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Beam Therapeutics
Thursday September 14, 2023
Welcome
8:30 AM-9:00 AM
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Andrew Campbell, MD
Highlight The Giants
9:00 AM-12:15 PM
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Keith Quirolo, MD
SC Advocate
SC101 & Cayenne Wellness Center
Sickle Cell Trait Education
2:00 PM-4:30 PM
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Pat Corley, RN
Nurse Educator
Cayenne Wellness Center & Children´s Foundation
Are We Where They Wanted Us To Be? Gene Therapy, Cost
4:15 PM-4:45 PM
[View Session]
Betty Pace, MD
Distinguished Chair of Pediatric Hematology/Oncology
Augusta University
Before The Flood: Benefits of the Sickle Cell Movement: Marilyn Gaston, MD
4:45 PM-5:30 PM
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Celebration of Life
5:30 PM-6:00 PM
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Sheila Marchbanks, MBA
SC Advocate & Warrior
Friday September 15, 2023
Stephanie Mulkey Keynote Speaker Session – Are We Where They Want Us To Be?
9:00 AM-12:30 PM
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Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)
Wellness Break: Hydration, Breathing, and Mental Health
1:30 PM-2:00 PM
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PsychoSocial Part I: Developing Brilliance, Resilience and Strength: We’re Smart and We’re Strong
2:00 PM-3:30 PM
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Trudy M. Tchume-Johnson
Program Manager/Newborn Screening Coordinator
The Children’s Hospital of Philadelphia
PsychoSocial Breakout II: Main Session
3:30 PM-6:45 PM
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Andre Marcel Harris, MSW
Sickle Cell Association of Houston
PsychoSocial Breakout: Baby Boomers Session (60 and older)
3:35 PM-5:00 PM
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Wanda Williams
PsychoSocial Breakout: Caregiver (includes Parent/Children/Spouses/Partner/Siblings)
3:35 PM-5:00 PM
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PsychoSocial Breakout: Generation Alpha – (11 – 17)
3:35 PM-5:00 PM
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Ninah Walters
PsychoSocial Breakout: Generation X Session (43 – 59)
3:35 PM-5:00 PM
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Felicia M Hunt, PsyD
MA in Marriage and Family Therapy (MFT), Sex Coach, and Sex Educator 6EXCoach, LLC
PsychoSocial Breakout: Generation Z – (18 – 26)
3:35 PM-5:00 PM
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Dalia Thomas
PsychoSocial Breakout: Millennials Session (27 – 42)
3:35 PM-5:00 PM
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Dorian Archie
Celebration, Tribute Gala
6:45 PM-9:30 PM
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Matt Jemele
Matt Jamele and The Jammin’ Jellies
Saturday September 16, 2023
Welcome and Cayenne Wellness Center Board Updates
8:20 AM-8:40 AM
[View Session]
Shona Stephens, MPH
CWC Board Chair
Cayenne Wellness Center
Awards
8:30 AM-9:45 AM
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Master Burt
Artist
Master D. Burt
Pat Corley Keynote Speaker Session: Shout out to; Call out to; What is your value? What do you bring?
9:45 AM-11:00 AM
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Stephanie Ibemere, PhD, RN
Assistant Professor in the School of Nursing
Duke University
Global Patient Panel
11:00 AM-1:30 PM
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Cassandra Trimnell
Patient Advocate & Executive Director SC101
Patient Experiences (focus on management and treatment)
11:00 AM-11:15 AM
[View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)
SC101
11:15 AM-1:00 PM
[View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)
Implicit Bias Training
1:00 PM-3:45 PM
[View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)
Wellness Break – Hydration, Breathing, and Nutrition
1:30 PM-2:00 PM
[View Session]
Self Care (Main Room)
2:00 PM-2:15 PM
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Self Care: Art (Virtual)
2:15 PM-3:30 PM
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Mia Robinson
Executive Director and Co-founder
Sickle Cell Awareness 365 (SCA365)
Self Care: Cooking (In Person)
2:15 PM-3:30 PM
[View Session]
Melissa Corral
Dietitian
Nutrition Savvy, LLC
Self Care: Cooking (Virtual)
2:15 PM-3:30 PM
[View Session]
Misty Williams
Self Care: Gardening (Virtual)
2:15 PM-3:30 PM
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Lori Vick, Ph.D., MAT, RN
Nursing Professor & Researcher
University of South Carolina
Self Care: Vision Board (Virtual)
2:15 PM-3:30 PM
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Vernita Bradford, MSW
Kaiser Permanente
Self Care: Sound Healing (Virtual)
2:15 PM-3:30 PM
[View Session]
Carolyn Rowley, PhD
Executive Director & Founder
Cayenne Wellness Center & Children´s Foundation
My Journey, My Legacy (Main Room)
3:30 PM-5:30 PM
[View Session]
Theopia Jackson, PhD
Chair, Department of Humanisitic Clinical Psychology
Saybrook University
My Journey, My Legacy (Breakout 1 – Shyra Arrington)
3:45 PM-4:45 PM
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Patient Experiences (specific to ED)
3:45 PM-4:00 PM
[View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)
Emergency Room
4:00 PM-5:00 PM
[View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)
Stroke and Intracranial Bleeds
5:00 PM-6:30 PM
[View Session]
Kim Smith-Whitley, MD
Board Certified Pediatric Hematologist; EVP and Head of Research and Development
Global Blood Therapeutics (GBT)
