2022 Seminar Content
Thursday, September 15
8:00 am – 8:10 am
Black Panther Moments & Community Engagement
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8:45 am – 9:00 am
Welcome to California: Embracing Possibilities by Dr. Carolyn Rowley, PhD
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Executive Director at Cayenne Wellness Center and Adrienne Shapiro
· Dr. Carolyn Rowley, Executive Director, Cayenne Wellness Center
· Adrienne Shapiro, Axis Advocacy
· Reverend Zemoria Brandon, BSW, Social Worker Administrator, Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter
9:00 am – 12:45 pm
Morning Session: Sickle Cell Action Network (CME = 3.75 hrs)
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· Keith Quirolo, N/A
· Jhaqueline Valle, Research Scientist, Tracking California
· Niani Coker, MPH, CHES, Tracking California
· Patrick T. McGann, MD PhD
2:00 pm – 3:30 pm
Afternoon Session I: Sickle Cell Trait Education – Moderated by Tomia Austin, MEd, DrPH (CME = 1.5 hrs)
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· Tomia Austin, MEd, DrPH, Executive Director of As One Foundation; Technical Advisor/Consultant for Sickle Cell Trait & Disease research, As One Foundation
· Chase Jamele, Program Coordinator, Cayenne Wellness
· Keith Quirolo, N/A
· Tracey Bishop, GDPS, California Department of Public Health
· Amber Yates, M.D., Medical Director, Agios Pharmaceuticals
3:40 pm – 6:15 pm
Afternoon Session II: Clinical Trials in Gene Therapy and Bone Marrow Transplant – Moderated by Alexis Thompson, M.D. (CME = 2.5 hrs)
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· Alexis A. Thompson, MD MPH
· Akshay Sharma, Assistant Member, Department of Bone Marrow Transplantation and Cellular Therapy, St. Jude Children’s Research Hospital, Memphis, TN
· Adrienne Shapiro, Axis Advocacy
· Lisa B. Pullens, City of Hope Medical Center Pediatric BMT Dept.
· Patricia Niver, Parent of BM Warrior & SC Warrior , CHOA
· Maria Rivera, Administrative Assistant, Sickle Cell Community Consortium
· Jimi Olaghere, Manager Of Publisher Development, StackCommerce
· Tesha Samuels, Walk for ExSCellence
· Jewelyn Mims, Substitute Teacher and Historian, California State University, Los Angeles and Pasadena Unified School District
6:15 pm – 6:45 pm
Candlelight Ceremony
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· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Dr. Carolyn Rowley, Executive Director, Cayenne Wellness Center
Friday, September 16
8:00 am – 8:10 am
Black Panther Moments & Community Engagement
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9:00 am – 10:45 am
Morning Session I: Stephanie Mulkey Keynote Speaker Session – Dying In The City of The Blues and The Pain Game (Discover magazine article) by Wally Smith, MD (CME = 1.5 hrs)
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Wally R. Smith, MD, Professor of Sickle Cell Disease University Distinguished Professor, Virginia Commonwealth University
10:45 am- 12:40 pm
Living My Best Life with Sickle Cell Disease. What Inspires You? – Interactive (CME = 2 hrs)
· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Jody Johnson, Cayenne Wellness
11:00 am – 12:15 pm
Breakout Session 1: Art
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11:00 am – 12:15 pm
Breakout Session 2: Music
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11:00 am – 12:15 pm
Breakout Session 3: Vision Board
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11:00 am – 12:15 pm
Breakout Session 4: Writing/Journal
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11:00 am – 12:15 pm
Breakout Session 5: Mindfulness (Breathwork and Movement)
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11:00 am – 12:15 pm
Breakout Session 6: Nutrition/Cooking
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11:00 am – 12:15 pm
Breakout Session 7: Gardening
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1:30 pm -1:50 pm
Movement/Exercise by Marjorie DeJoie Brewer
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· Marjorie Brewer Dejoie, M.D., MAD Fit
2:00 pm – 3:30 pm
Afternoon Session I: PsychoSocial: What’s All The Chatter About… Unconscious and Implicit Bias and Racism (CME = 1.5 hrs)
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· Theopia Jackson, PhD., Program Chair, Clinical Psychology Degree, Saybrook University
· Stephen Nelson, Hackman Consulting
· Ulysse Guierrier, President, Sickle Cell Association of Ontario
· Ginger Davis, President, Sickle Cell/Thalassemia Patients Network, Inc. (SCTPN)
· Shirley D. Powell, ND
· Phillip Okwo, Catalyst Finance, Dow
· Dr. Jean Walrond Ph.D., President & COO, Research & Education, Sickle Cell Foundation of Alberta
· Pat Corley, RN, Registered Nurse, Nurse Educator
3:45 pm – 5:15 pm
Afternoon Session II: Modifying Therapies – Moderated by Eva Enechukwu (CME = 1.5 hrs)
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· Eva Okereke-Enechukwu, Provider, Florida Sickle Cell Center
· Carolyn Hoppe, MD, Senior Medical Director, Clinical Science Global Blood Therapeutics
· Misty Williams
· Tynisha K. Hall, TynishaKCollectionLLC
· Adrienne Shapiro, Axis Advocacy
· LeKita Deal
· Felicia M. Hunt, MA, Sex Coach, 6EXCoach Sex coaching and sex education services
· Yvette Davis, Social Worker, Los Angeles County
· Kamille Linton, Medial Assistant , SC Warrior
· Mary Moore RN, RN/Living Benefits Specialist, Axis Advocacy
· Kadeem Gayle, Health Coach, Carisma
· Anthony Richardson, Fire safety Inspector, SCD
· Robert Brodie, PhD, Senior Psychologist supervisor, Patton State Hospital
· Marcus McKinley, SCCA, SOFWSCD, Indp Pt Advocate
5:30 pm – 7:00 pm
Young Adult Session (ages 18 – 35) – Embracing Possibilities Moderated by Calvanay Nunley and Servio Astacio (CME = 1.5 hrs)
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· Calvanay Nunley, Director of Camp Super Star : Sickle Cell Camp in the Northern California/ Mentor/ Advocate, The Pull Up
· Servio Astacio, Contract Loan Processor, Independent Processing Network
· Aaron N Washington, Intern, SICKLE CELL CONSORTIUM
· Alexis Lewis, California State University Northridge
· Traci “Trai IcarT” Caudle, Artist
· Lathan Singleton, The Unspoken Hero Society
· Charon Simmons, Spokesperson, Sickle Cell Foundation of Orange County
· Lance Jasper Jones, Director, Jasper House Warriors Foundation, Inc.
8:00 pm – 9:30 pm
Benefit Concert featuring Dessy DiLauro and Ric’key Pageo of Parlor Social
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Saturday, September 17
8:00 am – 8:10 am
Black Panther Moments & Community Engagement
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Cayenne Wellness Center Board Update – Shona Stephens, Board Chair
· Shona Stephens, MPH, Walden University
8:50 am 9:00 am
Award Presentations
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· Traci “Trai IcarT” Caudle, Artist
· Omeka Edwards
· Shirley Miller
· Pat Corley, RN, Registered Nurse, Nurse Educator
· Adrienne Shapiro, Axis Advocacy
9:30 am – 10:40 am
Morning Session I: Pat Corley Keynote Speaker Session – Embracing Possibilities
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· Shauna H. Whisenton, Manager, Sickle Cell Disease Community Engagement, American Society of Hematology
10:45 am – 12:15 pm
Morning Session: Sickle Cell 101 – Moderated by Zahra Pakbaz, MD
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· Zahra Pakbaz, MD
· Mia Robinson, President of the general assembly, Sickle Cell Community Consortium
· Gabrielle Rodgers, Art institute of Inland Empire
· Ifeyinwa (Ify) Osunkwo MD, MPH, Chief Patient Officer, SVP, Forma Therapeutics
10:50 am- 12:40 pm
Morning Session: Global Patient Panel
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· Eda Omur, Voices of Sicklecell
· Noel Bell, VP of Marketing & Communication, Sickle Cell Support Foundation of Jamaica
· Alexandra Burgos, Asociación Española de la Enfermedad Falciforme (ASAFE) [Sickle Cell Association of Spain]
· Lwimba Kasongo, Advocate, SICKLECELL PATIENT AND ADVOCATE
· Gabriel Badejo, SCAGO (Sickle Cell Awareness Group of Ontario)
· Patrise Holden, PhD, CEO, The Language Key
12:15 pm – 1:45 pm
Afternoon Session: Emergency Department – Moderated by Henry Young, MD
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· Dominique Friend, Founder, Sickle International Family Coalition
· Henry Young
· Paula Tanabe, PhD, RN, FAEN, FAAN, Laurel Chadwick Distinguished Professor of Nursing, Professor, School of Medicine, Duke University
· Corrie Chumpitazi, Associate Professor of Pediatrics, Baylor College of Medicine
1:30 pm- 4:30 pm
Afternoon Session I: Possibilities Powered
[See sessions below]
· Pam White, Investigations Specialist, Bridging the Gap-Adult Sickle Cell Foundtion
· La’Shardae Scott, MSW, CHES, CHW, Sickle Cell Project Director Region III, Sickle Cell Project of North West Ohio
· Marsha Treadwell, PhD, Clinical Scientist, Children’s Hospital Oakland Research Institute
· Misty Williams
· Sheila Marchbanks, Community Support Facilitator, Sickle Cell Center, Loma Linda University Health/Medical Center
· Adrienne Shapiro, Axis Advocacy
· Kristyl Smith-Brown, Adjunct Professor, Glendale Community College and Cerritos Community College
· Carroll Joseph Brown, Director of FRP, Friends LA
· Ron Smith and Vivian Smith, Pastor, True Workers of the Holy Trinity House of Prayer
· Timotheus Hampton, Lead Civil Engineer, USACE SPK
· Terri Lynne Hampton
· Michael and Laura Wheeler
· Shamonica Wiggins and Dwight Mayes, Social Media Manager, Sickle Cell Community Consortium
· Ric’key Pageot, Artist
· Felicia M. Hunt, MA, Sex Coach, 6EXCoach Sex coaching and sex education services
· Norma Stoker-Mtume, MHS, MA MFT
2:00 pm – 4:00 pm
New Modifying Therapies and Curative Therapies – Moderated by Cage Johnson, MD
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· Cage S. Johnson, M.D., Professor Emeritus of Medicine and of Physiology and Biophysics, Keck School of Medicine University of Southern California
· James Griffin, Author Sickle Cell Advocate, Wisconsin
· James Taylor, MD, Howard University
· Kendra and Lord Cole, Parent representatives, Sickle Cell Disease Association of Illinois
· Mark Walters, MD, Director, blood and marrow transplant, UCSF Benioff Children’s Hospital Oakland
4:15 pm – 6:15 pm
Sickle Cell Trait – Moderated by Ward Hagar, MD
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Robert Hagar, Director, Adult Sickle Cell Center; Professor Internal Medicine (Dept of Pediatrics), UCSF, UCSF Benioff Children’s Hospital Oakland
· Farron Dozier, Writer “Inspirational”, Life of a
· Alexis A. Thompson, MD MPH
· Tomia Austin, MEd, DrPH, Executive Director of As One Foundation; Technical Advisor/Consultant for Sickle Cell Trait & Disease research, As One Foundation
